April 16, 2021April 15, 2021
EveryLife Scholarship Fund Open Until May 7 for Adults With Rare Diseases in US

The EveryLife Foundation for Rare Diseases is accepting applications for a scholarship program that aims to help adults with a rare disease pursue personal goals through ... Read more
April 16, 2021April 16, 2021
Used in Chinese Medicine, Plant Compound Reduces Lung Scarring in Rats

Often used in traditional Chinese medicine, a plant compound called salvianolic acid B, or SAB, has been found to reduce lung scarring (fibrosis) and blood ... Read more
April 15, 2021April 13, 2021
Managing ‘Scanxiety’: Tips for Rare Disease Patients

A study published early last year revealed that patients living with a rare disease have a greater risk of developing anxiety and other mental health ... Read more
April 14, 2021April 14, 2021
Ofev May Help Treat IPF With Lung Cancer, Case Report Suggests

A patient with idiopathic pulmonary fibrosis (IPF) who also had non-small cell lung cancer responded well to treatment with Ofev (nintedanib), according to ... Read more
April 13, 2021April 13, 2021
University Seeks Patient, Caregiver Help to Define Future PF Research

Scientists at the University of Nottingham, in the U.K., are asking pulmonary fibrosis (PF) patients — many of whom donate “gifts” of cells and samples ... Read more

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April 27, 2018April 27, 2018

Aloperine May Protect Against Pulmonary Fibrosis in Mouse Model, Study Suggests

News

Treatment with plant-derived aloperine reduces the severity of lung injury in a mouse model of pulmonary fibrosis, a new Chinese study reports. The research, “Aloperine Protects Mice against Bleomycin-induced Pulmonary Fibrosis by Attenuating Fibroblast Proliferation and Differentiation,” was published in ... Read more

EveryLife Scholarship Fund Open Until May 7 for Adults With Rare Diseases in US

Used in Chinese Medicine, Plant Compound Reduces Lung Scarring in Rats

Managing ‘Scanxiety’: Tips for Rare Disease Patients

Ofev May Help Treat IPF With Lung Cancer, Case Report Suggests

University Seeks Patient, Caregiver Help to Define Future PF Research

University Seeks Patient, Caregiver Help to Define Future PF Research

FDA Designates Axatilimab an Orphan Drug for IPF

$5M Donation From Grateful Patient Helps VCU Health Expand PF Care

What It Means When I Say I Had a ‘Bad Clinic Day’

Amgen to Acquire Rodeo Therapeutics, Preclinical Program for PF

Esbriet, Ofev Found to Benefit IPF Patients in Clinical Practice

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KL-6 Protein Found to Be a Promising Biomarker for IPF Prognosis

How COVID-19 Has Shifted People’s Lives and Habits

Cost of Rare Diseases in US? Nearly $1 Trillion in 2019, EveryLife Foundation Finds

Ofev’s Ability to Slow Decline in Progressing ILDs Not Dependent on Prior Therapy

IPF Diagnosis and Treatment Changing for Better in UK, Registry Study Finds

Lassen, Cedars Sinai Partner to Advance Antibody Therapies for IPF

Finding Peace and Power With Breathing Exercises

Fine Particulate Air Pollutants Raise Risk of Acute IPF Flare-ups

The Pandemic Is Stealing My Already Limited Time

Weighing Risks and Rewards as a Lung Transplant Patient

PulmoSIM Launched to Repurpose Medications for Rare Lung Conditions

Pollutants and Cigarette Smoke Trigger Protein to Possibly Cause IPF

Pitt, Yale Universities Join Consortium to Advance Therapy Development

In Webinar, Expert Discusses Strategies to Improve Quality of Life

My Age Prevents Me From Participating in Clinical Trials

CohBar IDs Peptide to Advance in Testing as Possible IPF Treatment

GALACTIC-1 Trial of Inhaled IPF Therapy to Stop High Dose, Restrict Low Dose

MDM4 Protein May Help to Treat PF by Clearing Cells That Drive Fibrosis

As a Carer, I’m Conflicted About Getting the COVID-19 Vaccine So Early

Peptide-coated Nanoparticles Limit Damage of IPF, Early Study Finds

Caring for My Mom When Her Lifesaving Organ Brought Hereditary Risk

Pesticide Exposure, Agricultural Work Linked to Increased Risk of IPF

Pink, Green, Blue and Purple Lights Illuminated World for Rare Disease Day

Viral and Bacterial Infections in Lungs May Promote IPF

Ofev Costs to Treat PF-ILD Should Be Reimbursed in Canada, Groups Say

Aloperine May Protect Against Pulmonary Fibrosis in Mouse Model, Study Suggests