Author Archives: BNS Staff

30 Days of PF: Make Every Breath Count

Photo courtesy of Aishia Burnett Day 30 of 30 This is Aishia Burnett’s story: January 2015: Picture it: I was working full time, going to school part time, a mom to two high schoolers, happily married to my best friend. I got pneumonia and my doctor sent me for…

30 Days of PF: An Outsider’s Perspective

Photo courtesy of Kevin Schaefer Day 28 of 30 This is Kevin Schaefer’s story: Four years ago, I accepted a position at BioNews Services, the parent company of Pulmonary Fibrosis News. Having lived with a neuromuscular condition called spinal muscular atrophy my entire life, I already had a…

30 Days of PF: We Are Stronger Together

Photo courtesy of Andrew Mooney Day 27 of 30 This is Andrew Mooney’s story: I was diagnosed with IPF nine years ago and am living with my condition as best I can. My wife, Lyn, has been at my side from the start and has been a constant…

30 Days of PF: My Love Code for My Sister

Photo courtesy of Shari George Day 26 of 30 This Shari George’s story: “Ma soeur.” Strange how a pet name can become so important, like a code that transmits more than the actual words. French for “my sister,” these words evoke so many memories — and the memories are…

30 Days of PF: My Message Is Hope

Photo courtesy of Holly Patient Day 25 of 30 This is Holly Patient’s story: I don’t know exactly when my IPF journey began. Was it on that hike, when I felt dizzy and out of breath? Was it that time when I fell skiing and literally could not…

30 Days of PF: Taking My Time to Reveal My Diagnosis

Photo courtesy of Jofac O’Handlin Day 24 of 30 This is Jofac O’Handlin’s story: My story begins when my wife and I each suffered a bout of pneumonia in February 2013. When it came to recovery, Susan came out of it much sooner than I did, and the X-rays…

30 Days of PF: Choosing Not to Get ‘On the List’

Photo courtesy of Rand O’Brien Day 22 of 30 This is Rand O’Brien’s story: It started when I began feeling short of breath when I reached my third-floor office. I thought it might be my heart since two years prior, I’d had two stents put in. But after my…

30 Days of PF: Honoring the Unforgettable Friends I’ve Lost

Photo courtesy of Kevin Olson Day 21 of 30 This is Kevin Olson’s story: I joined the Greater Kansas City Pulmonary Fibrosis Support Group, making several new friends who would influence my life. Unfortunately, we would lose some of them to this dreadful disease. I am honoring some…