Just Breathe...Compassionate Help for the PF Journey

d87dbd0122f8a05f8c93e6576ea24dfaKim Fredrickson was an Author, Blogger and Marriage and Family Therapist. She lived in Northern CA, with her husband of 40 years and had 2 adult children. Kim was diagnosed with Pulmonary Fibrosis in May 2014, as a rare complication from chemotherapy and radiation for breast cancer. Kim is the author of Pulmonary Fibrosis Journey: A Counselor and Fellow Patient Walks with You, The Power of Positive Self-Talk, and Give Your Kids a Break: Parenting with Compassion for You and Your Children. Kim believed that learning to advocate for yourself with kindness and compassion, just as you would for a good friend, makes this difficult journey a little easier. In her patient column on Pulmonary Fibrosis News, she offered practical ideas to help us care for ourselves, fight for what we need, and process our many-layered emotions. Kim passed away in 2019, but her inspirational work advocating for the IPF community continues to inspire and endure.

Read more of Kim’s writing at www.kimfredrickson.com

Beginning Testing for a Lung Transplant

About six weeks ago, I shared that I am under consideration by the University of California, San Francisco (UCSF) for a lung transplant. A few weeks ago, I got the good news that UCSF said YES to allow me to start initial testing to…

The Challenge of Traveling with Oxygen

As a pulmonary fibrosis patient, I try to stay as active as possible. But as my disease has progressed, it has been harder and harder to travel. Just a few days ago, my husband and I traveled 400 miles to see my 94-year-old father whose health is failing.

The Unexpected Positives of PF

Being diagnosed with pulmonary fibrosis is tough, don’t get me wrong. If I could wave a magic wand and not have PF, I would. As I’ve grieved over the last three and a half years, I’ve come to appreciate some positives related to this diagnosis. To learn more…

A PF Patient Reflects on Another Birthday

Two weeks ago, I was blessed to celebrate another birthday — 61 to be exact! As a PF patient, you know how significant this is. I wonder if every birthday is my last. These thoughts happen for me with every holiday and anniversary, too. I normally would not…

My First Visit with the Lung Transplant Team

Last week, I had my first appointment with the lung transplant team at the University of California, San Francisco (UCSF). Last month, I wrote a column about the team’s decision to meet with me. This first appointment went very well, better than expected! Praise God!…

An Oxygen Scare Left Me with No Choice

I had a scare when using oxygen last week. It’s not unusual to have my oxygen levels off target from kinks in my cords. And I’ve accidentally set the liters-per-minute dial too low. But last week was different. I was getting ready to go to a massage appointment.

PF Patients Need Help!

As PF patients, we need all the help we can get, no matter where we are in the progression of this disease. Newly diagnosed patients often feel shocked, confused, angry, sad, or anxious, and desperately need information to figure out what is happening to them. It is normal…