I usually take a Tessalon pearl before a dental visit. It really suppresses the cough.

As a retired anesthetist with IPF and a total knee, there are very few reasons to have a general anesthetic for a TKA. Spinals and epidurals are a common anesthetic approach with conscious sedation. You can also be discharged with an indwelling catheter at the incision site and “pain ball” to provide continuous pain control with a local…

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I’ve been on Ofev 100mg 2x day for 3 years. I had bad diarrhea on the 150mg so my doctor switched me to 100mg. My only side effect now is occasional nausea if I don’t eat enough fat and protein. I started Jascayd in July and the only side effect has been frequent BMs but not diarrhea. Some days I have decreased appetite but I attribute that to…

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Talk with your care team to see if they support sedated dentistry in your case.

I was on Jascayd and went back to Ofev. Jascayd side effects were a very bad back ache, leg weakness, and what drove Me to stop were termers. The only thing that was better was diarrhea. Remember that is Me and may not be You.

I was on Ofev high dose which after 15 months produced diarrhea. Lower does alone was fine but added Jascayd to it; again diarrhea. Stoped Ofev, now on Jascayd alone. No side effects.

I was on 10 liters, i took 2 tanks with me and that was it,, No issues ever,!

I am going off OFEV because of elevated liver issues. When I start Jascayd what side effects are common and does it help to take it with protein? That worked well with OFEV, but this is a different type of drug.

I had to hit pause last week. If you follow my column, Make Every Breath Count, you know I was recently hospitalized with shingles in my left foot and lower left leg. This resulted in drop foot on my left side.

I am home and learning to use a walker. Last week was exhausting for me with medical appointments. My body was telling me to rest. I…

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My father in law (Father) has SEVERE ILD. He inhaled chemicals on the job. Industrial Construction. His lungs were damaged instantly. He was up for a transplant, but ultimately tuned down. He’s been on oxygen for the last few years. The amount has gone up steadily. He fell 2 weeks ago &, injured his knee, requiring a total knee replacement.…

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I just canceled an appointment to have my teeth cleaned and check (after 2 years) because I hesitated to lay back in the chair with my portable oxygen. I was unsure if I would start coughing. After reading other responses, I may brave up and reschedule. Glad I joined the group!

👏

I did it several years ago, and the first set of soups helped (placebo effect?), but the second set didn’t seem to do much. I would not waste the money. Ask AI to help schedule and recommend supplements, but be very specific, as it can hallucinate…

I use my portable oxygen concentrator at the dentist, and it works great. My dentist works around it and frequently gives me breaks while working on my teeth. Don’t assume that all dentists provide their own oxygen for patient use. Mine does not.

I have Sjogren’s disease and one of the symptoms is dry mouth, so I have been going to the dentist…

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I’m so glad you changed pulmonologist! A positive one makes a big difference. I don’t listen to time frames because they put all of us in one pile a spit out the numbers. All of us are different , different ages, some have multiple diseases some respond to medicine well others don’t, some healthier than others, weight , eating right, not…

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Thank you all very much.

A friend recommended speaking with clinics that are used to working with anxious patients and those who have health complications. She mentioned finding thorough, reassuring care at places like https://casa-dentalis.de/, where they take time to discuss your needs and don’t rush treatments.

How many years ago, Artur? I received my bad news 2 days ago. I’ve found a drug where the side effect is, small and reversible hair loss. No extreme nausea etc that most of the other medication seem to give.

I was diagnosed with ILD – NSIP and I have been on prednisone on and off. Mainly taking Mycophonolate 1500 mg twice a day. I was doing ok until last year when everything started going downhill. I reached out to transplant team in November but my Lung functions are down to 30% and it seems like I have to take prednisone again to calm…

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Hi, I have tried it before, it didn’t work for me, it was just a waste of money. I only did two months protocol and I had to cancel it because there was no improvement.

Before you enter into any agreement ask for indendent data to verify any claims that are represented to you. Verify the autenticity of the test data. It is not FDA approved Google “Wei treatment of pulmonary fibrosis reviews” for a variety of perspective. Also ensure your care team is aware if your use of these products.

Sam…

I was diagnosed with IPF several years ago

Artur, can you remind me of your diagnosis?

Conversations in any of the PF Forums groups are private. The content is not disclosed in searches, making the conversations only available within the group.  

You are certainly welcome to comment on forum facts, especially if they are important to you.

Do you have any other questions about navigating the forums? Always happy to help!

Did anyone here try their “soups” treatment? I would love to hear some

comments about it.

YES

yes