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Advice for Patients & Caregivers Newly Diagnosed
Hello Everyone!
I know I have asked this before, specifically when the forums were first launched a couple of months ago. That said, we’ve had many more patients, caregivers, friends, family, advocates and researchers join us on the forums since then. Therefore, I wanted to ask two very personal but incredibly helpful questions from those of you who so kindly give your time and energy on this forum to help others. Those questions are:
- What is one piece of advice that you would give to a patient newly diagnosed with IPF? Perhaps it is a piece of advice that someone shared with you and you cherished it, or maybe it is something you have learnt that you wish someone would have told you.
2. What is one piece of advice that you would share with a caregiver of someone newly diagnosed? The caregiver role is exceptionally difficult, and we as patients are so very grateful for all that our caregivers do for us but we acknowledge that it is hard work.
Please share your answers to these questions for those who are new to our forums, and who may be seeking some advice or words of wisdom for dealing with their newly diagnosed disease (or that of their loved one).
Thank you all in advance for being so giving with your time and energy by contributing to these forums! I look forward to reading your advice again, or for the first time, as I am confident they will still be helpful for me.
Warm regards,
Charlene.
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