• Posted by Community Member on May 12, 2026 at 9:00 am

    Since being diagnosed with IPF, has anyone been dealing with fluid retention in their legs or ankles?

    This is not something I have experienced since my diagnosis, not regularly anyway. If this happened, it was likely due to excessive time on my feet, likely in my beloved (but unsupportive) flip flops or possibly related to diet. I haven’t been able to connect my recent fluid retention in my ankles specifically to either of these things and I’ve had it for a few days now. Each morning it seems better, but worse at night. I continue to try and be a detective for the source of this but I’d love fellow patients to share their experiences with me. Thanks in advance!

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