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Vaccinations and IPF
I am a strong believer in Western medicine and the importance of vaccinations, especially when living with a chronic illness like IPF. I came down with pneumonia, RSV, and influenza A this year, and it nearly killed me. It also significantly damaged my lungs. I routinely get the flu shot, but I’ve never gotten the pneumonia or RSV shot, partially because of my age. It is now being recommended, especially after the recent scary experience I had.
Has anyone had any adverse reactions from the pneumonia shot while living with IPF? Does your Pulmonologist also recommend it?
Note: I recognize that people have strong feelings regarding vaccines. Please keep this discussion appropriate and respectful.
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8 Replies
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I have never had any reactions to Flu, RSV, Pneumonia or Covid. Each person may have different responses. I also take 100mgs of Ofev twice daily and have had no side effects.
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I have had them all with no issues. Thinking about getting a second Covid, had the first one in early September, just to make doubly sure I am fully protected. I take ofev 100 and 150 as well as jascayd 9 mg twice a day. I don’t choose to spend time in the hospital or even die from something preventable.
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Hi Charlene – I took the RSV a couple of weeks ago after moving cross-country, and it slowed me down with aches and pains for several days. But I was already tired, and at almost 77, I’m glad I did it. So I get the flu shot yearly with no problem other than a little soreness. Pnuemonia is a one time shot (I think) with no issues, had shingles shot too. But I use supplements a lot and food to help stay well. It works!
stay well…
Steve-
Steve, check with your care team about the pneumonia vaccine. I am heading into my 5th transplant anniversary, and I work off a checklist that includes vaccines. The pneumococcal vaccine is listed as every five years dependent on the version you received. Sam…
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He Sam – thanks. VA reminds me of vacs when needed. Stay well – Steve
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All of those are recomended by my care team, plus an annual COVID, a tetanus shot every 10 years, and a shingles vaccination. Sam…
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hello to the 3 musketeers above. YES i also have had traditionally back pain but nothing like recently. i started with JASCAYD, (18MG / 2 D) About 6 months ago. i had tried OFEV but my stomach just could not handle it. and YES my back pain has been intolerable. i stopped taking it since i also started w loose stomach. i have now restarted my jascaid but only once per day for meantime, we will see.
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You might be a candidate for pirfenidone (it comes in a GENERIC FORM now) instead of OFEV. Ask your pulmonologist if this drug has any potential for you….
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