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NIH Agency Pioneers Collaborative Research Into Rare Diseases
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NIH Agency Pioneers Collaborative Research Into Rare Diseases
A little-known government entity within the National Institutes of Health (NIH) is helping to lead U.S. efforts to speed up the development of therapies for some 7,000 rare diseases.
The Office of Rare Diseases Research (ORDR), headquartered in Bethesda, Maryland, was established in 1993 within the NIH Office of the Director. In 2011, it became part of the NIH’s National Center for Advancing Translational Sciences (NCATS), which supports a variety of research programs and initiatives for rare diseases.
Anne Pariser, MD, director of the ORDR, said her agency’s mission is to facilitate coordination among scientists, clinicians and advocacy groups, while “accelerating rare diseases research to benefit patients.”
Pariser helped put together the recent Rare Disease Day 2018 event, which brought about 600 people into the NIH Clinical Center and was followed by 1,400 viewers online. She spoke to BioNews Services — publisher of this website — following the March 1 gathering.
Read more about this news here: “NIH Agency Pioneers Collaborative Research Into Rare Diseases“
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