Allan Byron

@christie-patient

Thank you for sharing the web link!

Steve

@irisr,

Hi Iris,

Does your father use/need a CPAP? If so hooking O2 through it may help, if it can handle his high O2 needs. Also, suggest going to a face mask for O2. I switch to that once in a while and that solves the problem temporarily anyway.

Stay well…

Steve

I have had a lung biopsy through my traechea where they took samples. Doctor still cant decide if I have IPF or UIP. I have no symtoms yet like cough or shortness of breath. I have ankylosis spondilitis, and fibromialgy. I had the test that goes through your nose and diagnoses GERD which I have. He still wants me to have a VAT? lung biopsy but…[Read more]

I will! Good for you!!

@bat777

Of course we are, Bev.  You should read some of the other forums regards how many times I have cautioned people when they take something new the impact it may or may not have.  That might help you, too.

Stay well… Steve

@bat777

Hey Bev, the last time was a little less than a year ago.

I just finished reading a lot I love PF patients Like myself and I’ve had similar experiences with different pulmonologists!I was diagnosed with all the fibrosis in 2018 after having a chest x-ray to see if I had pneumonia after I had two bouts. with bronchitis. The first one wanted me to have a long biopsy on the operating table which I did not w…[Read more]

@6yearvet

Hey Ben,

I have taken Wei twice and it helped both times. I may order again when I know I am coming stateside. I’m a vet too.

BTW exorcism and witchcraft are diametrically opposed…

Stay well – Steve

Interesting! It was, however, precisely because I am already immunosuppressed that my consultant didn’t want me to use a steroid inhaler. This may not hold for every form of PF however.

Hi, Christie –

I am an animal lover and have had pets all of my life. When I moved to England in 2006 from the USA, I had to bring my two young cats with me, particularly as the quarantine laws had dropped to meet EU regulations. They adapted beautifully to becoming British kitties and lived to ripe old age. I have their ashes and intend to have…[Read more]

Hi, Liz – My consultant told me to stop using mine. I was misdiagnosed with asthma and used them for years but they never really helped. I have hypersensitivity pneumonitis so I can’t speak for other kinds of PF.

@samgilmore

Hey Sam,

There is another thread with some good info in it you might want to review. I forget the exact title and I started it.  I have taken WEI twice. The first time I need good improvement and stability actually took it 4 months but could have done just as well with 3.  The second time I was in a major battle/recovery from an a…[Read more]

@linallbert

Hi Linda,

I have always eaten hot peppers with little effect before and after IPF(5 years now) I am not on any IPF meds (Ofev/Esbriet) but take omeprazole because it supposedly helps IPF scar tissue due to any acid reflux breathed in. There is an article about it on the forum someplace.

Try looking at lentils, split peas, for a stew…[Read more]