Daughter started the topic Hot Flashes in the forum Diagnosis Information and General Questions 3 days, 15 hours ago
My 88 year old Mom with advanced IPF has been experiencing hot flashes several times a day and night for the past 2 months. We thought it was the Prednisone but she’s been off of it entirely for 2 weeks and they are not decreasing. The visiting RN said many of her lung patients get hot flashes, but gave no reason for them. Is it really just fr…[Read more]
Daughter replied to the topic Questions about Ofev in the forum Using Our Forums 5 days, 19 hours ago
did not try OFEV as the cost, even with insurance, was astronomical. My mom is on Esbriet instead. She has lost appetite and weight but no other issues. Just wanted to tell people who are struggling with cost of these drugs to seriously check into the manufacturer’s programs for access. Mom gets her Esbriet free from the Genentech Fou…[Read more]
Daughter replied to the topic Weight Management is Hard with IPF in the forum Living with Pulmonary Fibrosis: 50+ 2 weeks, 2 days ago
If you are able to exercise at home, there is an online dancercise class for Seniors (like Zumba Gold but with some resistance bands too). Here are the details: On Zoom every Friday 11 am Pacific Time, USA- is easy-level Low Impact Dancercize to Contemporary Christian Music: Just open Zoom and join Meeting ID# 895 8345 8081 Passcode: 290532 …[Read more]
Daughter replied to the topic Side effects of exposure to the sun in the forum Esbriet (Pirfenidone) 1 month ago
Thank you for those facts! Do you know the mean life expectancy for an IPF patient on Pirfenidone, to compare?
Daughter replied to the topic How to Make Hospital Stays More Enjoyable in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 months, 1 week ago
Thanks for the tips! Mom just spent 12 days in Hospital in December followed by 5 more days a month later. We brought her favorite blanket, but I hadn’t thought about Audio Books or a Coloring book. Both great ideas. Will know for next time.
Daughter became a registered member 2 months, 1 week ago
Welcome to the PF forums Daughter, we’re glad you found us.