Biography

Name

agshahid

Nickname

agshahid

Year of Birth

1949

Gender

Male

Location

New York

Relationship

Patient

Short Bio

Never exposed to the supposed hazards to cause IPF.  I’m a retired Military Officer.  My exposures during the service has been to dust while doing the field exercises and training but never come in contact with Asbestos etc. Married, five children, Suffering from IPF, Hypertension, Hypothyroidism, borderline Diabetes, borderline high Cholesterol, Sleep Apnea, discs degeneration with a few herniated, Arthritis, (Headache, Acid Reflux and Diarrhea are the side effects of Ofev).  Remained on Esbriet initially for about 4 months but couldn’t tolerate due to Acid Reflux/Heartburn, stomachache, headache, discomfort throughout the day.  For me, Ofev is 50% more tolerable than Esbriet.

Type of Diagnosis

IPF

Treatment / Medical Facility

Mount Sinai Hospital, NY NY

Current medication regimen

Ofev

Lung transplantation status

currently in evaluation process

Supplemental Oxygen

yes

Best advice for PF symptom management

As we have to live with it, we should be more tolerant of  the negativity of the disease; I mean we should not think of its devastating nature.  Keep in mind that the death doesn’t have any criteria for its victims; it is immune to age, health condition, race, social status, gender, economic condition.  So work out the pleasant and comfortable disposition within yourself.

Are you currently taking an anti-fibrotic medication?

yes

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

Since March 2020

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