Forum Replies Created

  • Alan Park

    Member
    December 8, 2022 at 8:29 pm in reply to: VA Disability from IPF

    My heart go out to all of you and I hope the PACT Act includes you. My case is much different, it does not involve burn pits. Instead it involves exposure to plutonium from a leakage caused by a fire in a Bomarc missile silo at the 46th ADMS near McGuire AFB. Yes, it is difficult, if not impossible, to prove my pulmonary fibrosis was caused by that exposure. Exposure can cause pulmonary fibrosis immediately or it could take years to develop (my situation). Hopefully there are other veterans out there who was stationed at the 46th ADMS who has pulmonary fibrosis and was awarded a disability, I’d like to hear from them.

     

  • Alan Park

    Member
    December 1, 2022 at 3:09 pm in reply to: Starting out with Esbriet

    I was unable to tolerate Esbriet.  Initially I started with 1 capsule 3 times per day, gradually going up to 3 capsules 3 times a day. Every day, and I do mean every day, I was extremely fatigued with dizziness and nausea.  I stopped taking Esbriet and the symptoms stopped. After a year my doctor advised that I start again with Esbriet, this time only taking 1 capsule 3 times/day. Unfortunately the same symptoms started again on a daily basis, so I stopped. Fortunately my IPF has not gotten any worse, but who knows when it can flare up again. Just for information, I never did use OFEV because I have 3 heart stents.