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Allan Byron replied to the topic Dealing with Phlegm. in the forum Join the Discussion: Welcome to all PF/IPF Patients 8 months ago
Went to stem cell therapy in Arizona for treatment. It didn’t help a bit, just wasted money and time.
Allan Byron
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Allan Byron replied to the topic Zinc in the Role of Lung Fibrosis in the forum Pulmonary Fibrosis Awareness & Advocacy 11 months, 1 week ago
i will try to use the supplement, if it help it’s great. At this juncture bee are open to new therapies. What do we have to loss?
Allan Byron
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Allan Byron replied to the topic Deep-breathing exercises in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 2 months ago
Hello
Will try it myself, thanksAllan Byron
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Allan Byron replied to the topic "Breathless" Transplant News in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 3 months ago
Hello,
Thanks for a very inspiring story, I will be 74 soon and try to get a transplant. UCSF declined me, but
I called UCLA for a second opinion. I had an echocardiogram, and PFT, which they requested before making an evaluation.
I hope I will be reconsidered.Allan Byron
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Allan Byron replied to the topic "Breathless" Transplant News in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 3 months ago
Very inspiring, thanks for sharing
Allan Byron
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Allan Byron replied to the topic "Breathless" Transplant News in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 3 months ago
Best of luck on your journey. We will have u oun our prayers
Allan Byron
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Allan Byron replied to the topic Extreme Fatigue in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 3 months ago
I just take green tea and it Worldcraft2 me
Allan Byron
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Allan Byron replied to the topic Pulmonary Rehabilitation in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 5 months ago
Thanks so much for the info
allan
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Allan Byron replied to the topic WEI Institute Natural Care of Chronic Lung Diseases in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 6 months ago
Hello,
The 3 to 5 yes prognosis that they say is old info, long time ago. I was listening to a seminar by a pulmonologist and said that patient s now can even live more than 10 years today. I think we all need PMA. Positive mental attitude
Allan Byron
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Allan Byron replied to the topic Post-nasal Drip: Another Ailment to Deal With in the forum Diagnosis Information and General Questions 1 year, 7 months ago
I also have regular post nasal drip in the morning and I use Flonase, and
mose clips which help.
I may also try Claritin it it gets worse.
Allan Byron
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Allan Byron replied to the topic Diet additions that might help AND WEI Institute cure claim – really? in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 7 months ago
Hello,
Thanks for those information
Allan
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Allan Byron replied to the topic Do others with IPF cough for 20 minutes every morning? in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 7 months ago
Hello,
Have the same issue, which is refractory coughing most of the day. I have taken different cough meds, but they are only palliatives. I still go to the gym at least 3x a week and do threadmill and weights for one hour. I observed I easily get tired not like before.
Allan Byron
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Allan Byron replied to the topic Ipf or not in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 7 months ago
Hello folks,
hD same experience, Kaiser pulmonologist diagnosed me as having rheumatoid arthritis with auto immune disorder and started me on cellceph after doing a lung biopsy. I ask for a second opinion and went to UCSF. The pulmonologist diagnose me with IPF and started me with Perfinidone 801 3x a day.
My Kaiser pulmonologist is doing a…[Read more]
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Allan Byron replied to the topic Do others with IPF cough for 20 minutes every morning? in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 8 months ago
Hello,
I also cough and have sinus drips inthhe morning. K am currently on Perfinidone 801 mg 3x a day. I also have recurrent cough during the day, so I always have halls candy
which helps me.
Allan Byrin
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Allan Byron replied to the topic Diet additions that might help AND WEI Institute cure claim – really? in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 8 months ago
Hellos folks,
I just stopped the Wei regimen after 3 months because I didn’t see any effect. This is my second time of using it. The first time I used it also for 3 months, with no effect , and waited for another 6 months, and used it again, thinking it may work. To me I just wasted my money. I hope others may have better luck.
Allan Byron
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Allan Byron replied to the topic when rejected for transplant in the forum Using Our Forums 1 year, 8 months ago
Hello Dennis,
Im 73 years old, and live in SF Bay area, who was the person you contacted for your transplant? Any info you can provide will be appreciated. Thanks a lot
Allan Byron
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Allan Byron replied to the topic when rejected for transplant in the forum Using Our Forums 1 year, 9 months ago
Hello folks,
I am currently 73 year s old and live in the SF nay area, I hope some pet can give me idea if I can still quality and where can I go for evaluation?
Allan Byron
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Allan Byron replied to the topic Passing along what is working for me. in the forum Ofev (Nintedanib) 1 year, 9 months ago
Hello Jeff,
I wrote down what you eat, and may follow it. Thanks a lot, and best of health.
Allan
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Allan Byron replied to the topic Coughing in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 9 months ago
My coup is continuos from the time I wake up. I also have nasal drip. I take benzonatate prescription meds 3 pearl tablets 3x a day. Mucinex syrup also helps me but instead of the 12 hour effect I observed it’s effect is around 8 hours. I also have halls candy and that helps me control my coughing.
Allan Byron
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Allan Byron replied to the topic Diet additions that might help AND WEI Institute cure claim – really? in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 10 months ago
Hello Steve,
Nice to hear from you, I will give you feedback on Wei, and other developments.
keep healthy my friend!!
Allan Byron
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