Biography

Nickname

amy-egan

Gender

Female

Relationship

Family

Short Bio

My mother was diagnosed with IPF 5 years ago. She has been on supplemental oxygen for 4 years and is now starting to decline. She was not able to tolerate either Esbriate or Ofev so she is not on any medications. We’re living in prayer alone. She’d like to try laser therapy but we have not heard back from anyone we’ve contacted.

Type of Diagnosis

IPF

Treatment / Medical Facility

Allegheny Health Network

Current medication regimen

No e

Lung transplantation status

ineligible

Supplemental Oxygen

yes

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

5 years

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