Biography

Name

Robert Sather

Nickname

robert-sather

Year of Birth

1944

Gender

Male

Location

Utah

Relationship

Patient

Short Bio

Diagnosed over 3 years ago.  Was given an estimate of 1.5 to 2 years.  Now over 3 years.

Type of Diagnosis

IPF

Current medication regimen

3 X 801 mg Esbrient.

Lung transplantation status

considering later

Supplemental Oxygen

yes

Best advice for PF symptom management

For itching, Witch Hazel and good moisturizer cream. Energy is a problem and found it all a little better when I back off 1 or 2 pills a day. For the coughing I use cough drops.  Experiment and find the one you can tolerate. My lowest %SpO2 has been 59. But that was an extreme low for me. Most generally, my low never goes below 75 before I get my oxygen on. Does not take long under strenuous  situations the drop right off. So when I go to the store or in an active  situation I take my portable O2 generator.

Are you currently taking an anti-fibrotic medication?

yes

How did you find us?

Other

How long have you or the person that you are caring for had PF?

3+ years

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