robert-sather
@Robert Sather
•
Joined Mar 2021 •
Active 2 years ago
Biography
Name | Robert Sather |
Nickname | robert-sather |
Year of Birth | 1944 |
Gender | Male |
Location | Utah |
Relationship | Patient |
Short Bio | Diagnosed over 3 years ago. Was given an estimate of 1.5 to 2 years. Now over 3 years. |
Type of Diagnosis | IPF |
Current medication regimen | 3 X 801 mg Esbrient. |
Lung transplantation status | considering later |
Supplemental Oxygen | yes |
Best advice for PF symptom management | For itching, Witch Hazel and good moisturizer cream. Energy is a problem and found it all a little better when I back off 1 or 2 pills a day. For the coughing I use cough drops. Experiment and find the one you can tolerate. My lowest %SpO2 has been 59. But that was an extreme low for me. Most generally, my low never goes below 75 before I get my oxygen on. Does not take long under strenuous situations the drop right off. So when I go to the store or in an active situation I take my portable O2 generator. |
Are you currently taking an anti-fibrotic medication? | yes |
How did you find us? | Other |
How long have you or the person that you are caring for had PF? | 3+ years |
Privacy Policy and Terms of Use | I agree |