Marisa, good to hear the cellcept is doing its job, and reducing the prednisone should help you lose the weight you need to lose. Walking in the heat is hard; I have the same problem here where I live, but I am in the process of convincing myself to get up earlier and walk in the cool mornings. Though certainly awake early, getting up is… Read more

Hi Marissa, sorry to hear what all is going on with you. I have gone through pretty much the same testing since when diagnosed with CTD-ILD from polymyositis back in 2015. Although, my pulmonary fibrosis started several years before the polymyositis hit me. At any rate, I don’t know all my levels, but I’m on oxygen 24/7 at 4 lpm rest and 6… Read more

John,  a couple of questions: what is a laser treatment for your lungs?  And is that to lower inflammation? How does it do that? Thanks.