Pulmonary Fibrosis News Forums | Patricia Anne Hughes | Activity https://pulmonaryfibrosisnews.com/forums/members/anthony-hughes/activity/ Activity feed for Patricia Anne Hughes. Sat, 04 Apr 2026 01:38:35 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 00cdd558177b9812393c7d0f0cf85a37 Patricia Anne Hughes replied to the discussion Starting Ofev in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/starting-ofev/#post-15012 Fri, 26 Oct 2018 14:56:51 -0500 Reply to Starting Ofev

Hi,

my wife started OFEV recently but unfortunately had to stop due to an adverse affect on her liver. She is now about to start on Esbriet instead to see if that’s any better. We are advised that whilst both drugs apparently serve the same purpose the Esbriet is a little easier  to monitor side effects in the early stages in so much that you… Read more

]]> 0aa67bd16b1d7125fd934315c1a1bf82 Patricia Anne Hughes posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/5893/#acomment-5909 Sat, 06 Oct 2018 15:34:41 -0500 Hi again,
Seems to be standard practice here in the Uk whereas patients on ofev have regular monthly full blood checks due to the potency of ofev having a detrimental affect on other organs of the body. I must say Pat was feeling pretty rotten after only 3 weeks on ofev. The problem is of course is it’s difficult to know how effective the drug… Read more

In reply to - Patricia Anne Hughes posted an update Hi Think everyone agrees that the worst part of IPF is the persistent coughing. Just wondering whether anyone has come across some treatment or drugs that actually work […] ]]> 5ce6dd7734c1409562d6226e2875a21f Patricia Anne Hughes posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/5893/#acomment-5906 Sat, 06 Oct 2018 15:07:51 -0500 Thanks Charlene.
I see you are also fighting this horrible illness. As perhaps you have guessed I,m the carer husband for Pat and probably like other carers it’s just as terrible to be an onlooker seeing a loved one suffer knowing there is nothing you can do to help.
Unfortunately pats had to temporarily stop the ofev tablets as her liver count… Read more

In reply to - Patricia Anne Hughes posted an update Hi Think everyone agrees that the worst part of IPF is the persistent coughing. Just wondering whether anyone has come across some treatment or drugs that actually work […] ]]> 8891b5d5377597ed0e20bdceb333284b Patricia Anne Hughes posted an update: Hi Think everyone agrees that the worst part of IPF is […] https://pulmonaryfibrosisnews.com/forums/activity/p/5893/ Fri, 05 Oct 2018 21:09:49 -0500 Hi
Think everyone agrees that the worst part of IPF is the persistent coughing.
Just wondering whether anyone has come across some treatment or drugs that actually work in treating this cough?

]]> 5 a18f88cdbdc641c4de73479ad95635a5 Patricia Anne Hughes replied to the discussion Starting Ofev in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/starting-ofev/#post-14684 Fri, 28 Sep 2018 15:46:37 -0500 Reply to Starting Ofev

I,ve just started OFEV and suffering sickness etc. Really bad dry cough which is the worst symptom. Also recently started supplementary  oxygen. We seem to be fortunate in the UK where the drugs and oxygen are free ( although of course pre-paid the compulsory national health insurance contributions of a few pounds a week throughout my… Read more

]]> 64b91b6fa3d229784f5ad1b1f1f07979 Patricia Anne Hughes updated their profile https://pulmonaryfibrosisnews.com/forums/activity/p/5803/ Fri, 28 Sep 2018 15:16:04 -0500 0 fa9981f422f1a7d320ca4adc553c20b9 Anthony Hughes became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/5801/ Fri, 28 Sep 2018 15:14:08 -0500 1