Pulmonary Fibrosis News Forums | Bigjohn | Activity https://pulmonaryfibrosisnews.com/forums/members/bigjohn/activity/ Activity feed for Bigjohn. Wed, 22 Apr 2026 16:32:15 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 20489510ec571d9b5a7917eb427b18a0 Bigjohn replied to the discussion Determining when it's time to stop working in the forum Employment & Pulmonary Fibrosis https://pulmonaryfibrosisnews.com/forums/forums/topic/determining-when-its-time-to-stop-working/#post-39245 Wed, 21 Jan 2026 13:41:23 -0600 Reply to Determining when it's time to stop working

I finished work in July 24 as I started to suffer with blackouts. If you receive pip and. ESA it’s not great but you can manage. I now have a RS1 in place meaning less than 12 months to live. I’m in the process of withdrawing my Pensionbee funds tax free. Just a lot of red tape .

]]> 135059c8d10e7982f5d41fb5d2030366 Bigjohn started the discussion Equipment in the forum Treatments and Science https://pulmonaryfibrosisnews.com/forums/forums/topic/equipment/ Wed, 21 Jan 2026 13:22:39 -0600 Equipment

Just to help if anyone is looking to purchase a concentrator I have a INOGEN ROVE 6 for sale well serviced comes with remote battery charger and rucksack plus 4 batteries 3 16cell and 1 8 cell. Feel free to contact me on johnfortune140@sky.com

]]> e4f7ee0ff642e27ff5716e99d8106ba6 Bigjohn replied to the discussion OFEV cost and assistance in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/ofev-cost-and-assistance/#post-36250 Wed, 29 Nov 2023 22:19:55 -0600 Reply to OFEV cost and assistance

Hi ray I’m in the U.K. and was excepted for this treatment in September started taking the meds a week ago, I was diagnosed in 2020 . Been a struggle as I have Rheumatoid Arthritis as a secondary conidition. Was originally told I should get about 10 years well after 3 years I’ve been told now that with the new meds I might get 4 years as my…

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]]> a0a4e512c50e45e634970e850df0d27c Bigjohn became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/40217/ Wed, 06 Sep 2023 14:59:54 -0500 0