bill-hunt
Forum Replies Created
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I just lost my post so will begin again. I am replying to Patti and Nola Turner and others. I have a SimplyGo concentrator that is simple to operate and has 5 levels. I use it at a level 3 at the gym or anything else that is strenuous for me. I should use it more but I am stubborn as my wife keeps telling me. It cost me $2,295 and Medicare does not cover it. My oxygen level at home is around 97 and I feel good. It can be taken on a plane. There is a longer life battery you can buy. It also can be re-charged in the car. I am very please with it.
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The links do work in Charlene’s note but I couldn’t find a way to reply to David any where. I wanted to let him know that I intend to keep singing as long as I am able. I do not use oxygen in church. Today I wore it to the gym and it allowed me to use a bike for 30 minutes and it worked great, all levels were normal. Up to now I have avoided using O2 as much as possible but that may change..
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Charlene: On my first visit to my pulmonary doctor he prescribed a Ventolin HFA along with an anti static valved holding chamber. It was prescribed so that if I ever got into a situation where I would have breathing difficulty I would have it. Never felt the need for it yet but one never knows. Of course it I did need it, it is in my hall closet doing me no good and not available but at least I know where it is. A little humor here! Bill Hunt
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bill-hunt
MemberJuly 4, 2018 at 11:10 am in reply to: Putting Yourself First as a Patient with Pulmonary Fibrosis.I had not realized that running this website was taxing to you. You must think of yourself and do what is right for you. What a wonderful medium you have created. Whatever you decide to do we all will understand. My son always lets me know when I have to decide something and tells me “I am sure you will make the right decision” and then walks away. Please keep us posted! Blessings to you. Bill Hunt
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I am being coerced into taking Esbriet so I have been reading all your posts from others. Not sure if I want to take it at this time. I am newly diagnosed so this is all new to me. I have given up and accepted getting a “simply go mini concentrator”. I know that will help me to exercise more without getting light headed. I am starting pulmonary rehab next week. Fortunately, I am feeling well for a man of 85 except when exerting myself. I have enjoyed reading your news letters and have learned so much. Keep them coming.
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bill-hunt
MemberJanuary 11, 2019 at 11:17 am in reply to: Feeling Rushed By Others as a Patient with PFRushing to get dressed or undressed causes my o2 level to drop. The calisthenics of those movements is what causes my problem. I am learning though. Waiting in line like you wrote does not seem to be a problem for me. I am fortunate so far. I enjoy your posts and print a lot of them. Thank you!