[bill-hunt]

I just lost my post so will begin again.  I am replying to Patti and Nola Turner and others.  I have a SimplyGo concentrator that is simple to operate and has 5 levels.  I use it at a level 3 at the gym or anything else that is strenuous for me.  I should use it more but I am stubborn as my wife keeps telling me.  It cost me $2,295 and Medicare does not cover it.  My oxygen level at home is around 97 and I feel good.  It can be taken on a plane.  There is a longer life battery you can buy.  It also can be re-charged in the car.  I am very please with it.

 

[bill-hunt]

The links do work in Charlene’s note but I couldn’t find a way to reply to David any where.  I wanted to let him know that I intend to keep singing as long as I am able. I do not use oxygen in church. Today I wore it to the gym and it allowed me to use a bike for 30 minutes and it worked great, all levels were normal. Up to now I have avoided using O2 as much as possible but that may change..

[bill-hunt]

Charlene:  On my first visit to my pulmonary doctor he prescribed a Ventolin HFA along with an anti static valved holding chamber.  It was prescribed so that if I ever got into a situation where I would have breathing difficulty I would have it.  Never felt the need for it yet but one never knows.  Of course it I did need it, it is in my hall closet doing me no good and not available but at least I know where it is.  A little humor here!   Bill Hunt

[bill-hunt]

I had not realized that running this website was taxing to you.  You must think of yourself and do what is right for you.  What a wonderful medium you have created.  Whatever you decide to do we all will understand.  My son always lets me know when I have to decide something and tells me “I am sure you will make the right decision” and then walks away.    Please keep us posted!   Blessings to you.   Bill Hunt

[bill-hunt]

I am being coerced into taking Esbriet so I have been reading all your posts from others. Not sure if I want to take it at this time. I am newly diagnosed so this is all new to me.  I have given up and accepted getting a “simply go mini concentrator”.  I know that will help me to exercise more without getting light headed. I am starting pulmonary rehab next week.  Fortunately, I am feeling well for a man of 85 except when exerting myself.  I have enjoyed reading your news letters and have learned so much.  Keep them coming.

[bill-hunt]

Rushing to get dressed or undressed causes  my o2 level to drop.  The calisthenics of those movements is what causes my problem.  I am learning though.  Waiting in line like you wrote does not seem to be a problem for me.  I am fortunate so far.  I enjoy your posts and print a lot of them.  Thank you!