Yvonne posted an update 3 years, 4 months ago
@bill-mckee Hello Bill
I was just diagnosed with genetic tests confirming the reason behind my Pulmonary Fibrosis. I chose OFEV over Esbriet due to having 2 pills a day to survive through overt having 9 pills to take. AND, the sun complications would be bad for me since I travel to Mexico.
How are you doing, still handling the meds pretty…[Read more]
HEllo Yvonne: I began taking OFEV in Jan. 2018. I quickly learned that you don’t take it without eating!! While it’s not foolproof, I quickly correlated cramping and nausea with carelessly taking the medication without food!
No hair loss.
Progression has been “slow”, but steady now. Three years after diagnosis, it’s clear that I am less…[Read more]
Thank you very much Bill. I’ve not been on this site for quite awhile and just now saw your message, and it reminded me that I can do everything I can to fight this disease BUT, ultimately God is control of everything, he’s not forsaken me, and He is aware of everything I’m facing!
After just 3 weeks on OFEV, it caused Hypothyroidism for me an…[Read more]