Pulmonary Fibrosis News Forums | Bill Friedman | Activity https://pulmonaryfibrosisnews.com/forums/members/billfriedman/activity/ Activity feed for Bill Friedman. Fri, 17 Apr 2026 01:23:18 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 7430899d3adebcfcc7cf5da63985bee7 Bill Friedman posted an update: I’m at the one year since diagnosis level, and have taken […] https://pulmonaryfibrosisnews.com/forums/activity/p/28404/ Fri, 16 Jul 2021 19:04:55 -0500 I’m at the one year since diagnosis level, and have taken OFEV religiously from the start. I still play golf 3-5 times a week, and work out with weights on off days, never miss a day of exercise. The OFEV causes daily diarrhea, gas, and discomfort. However, my pulmonary functions including CO Diffusion have all improved over the last year. Not… Read more

]]> 1 1e04c8ae32eed48d7187bb710bea821b Bill Friedman replied to the discussion Leg muscle weakness side effect of OFEV in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/leg-muscle-weakness-side-effect-of-ofev/#post-28125 Wed, 21 Apr 2021 17:00:16 -0500 Reply to Leg muscle weakness side effect of OFEV

I’m 82, diagnosed with IPF one year ago, and on 150 Ofev Q12 h. I play golf, walk 4 miles, and lift wts on alternating days. The Ofev makes me sick, but I have controlled it somewhat with fewer spicy, greasy, or sweet foods. About once a week I miss a dose if the gas or diarrhea gets severe. Try not to miss more than one dose a week. This… Read more

]]> fb695af0ccddd0424ba4bf02b5303788 Bill Friedman replied to the discussion POSSIBLE MISDIAGNOSIS in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/possible-misdiagnosis/#post-27555 Wed, 03 Mar 2021 04:20:17 -0600 Reply to POSSIBLE MISDIAGNOSIS

Charlene, ,
Got both on Internet; Hudson RCI inspirometer, and Mir Smart One Peak flow and FEV1 meter. Both inexpensive. The Mir device reads out on my IPhone with a permanent record of daily results. Really handy, and simple to use. Love your posts. Bill

]]> ce348100691a64accce995f9023fd77c Bill Friedman replied to the discussion POSSIBLE MISDIAGNOSIS in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/possible-misdiagnosis/#post-27461 Wed, 24 Feb 2021 03:05:25 -0600 Reply to POSSIBLE MISDIAGNOSIS

Hi.

My name is Bill, and I was dx’d with IPF last July. My Cardiologist ordered a High res CT scan of my heart, and sent me to a Pulmonologist who said my heart was OK, but the CT showed IPF. I’ve been on OFEV ever since. I hate that vile drug. It causes amazing amts of gas and diarrhea. I take an Imodium along with the Ofev, and that helps a… Read more

]]> b65dd575394acca195f4883168014e9c Bill Friedman became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/22601/ Fri, 25 Sep 2020 01:06:10 -0500 1