Pulmonary Fibrosis News Forums | Bob Humphreys | Activity https://pulmonaryfibrosisnews.com/forums/members/bob-humphreys/activity/ Activity feed for Bob Humphreys. Wed, 15 Apr 2026 03:46:40 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 6f6bb92898b76058601bdc97550988b1 Bob Humphreys replied to the discussion Loss of taste in the forum Esbriet (Pirfenidone) https://pulmonaryfibrosisnews.com/forums/forums/topic/loss-of-taste/#post-20338 Tue, 16 Jul 2019 20:57:23 -0500 Reply to Loss of taste

Charlene,

I do like Ice Cream and some snacks. But somethings I used to eat daily don’t appeal anymore. I used to eat popcorn almost every night but not the microwave bags have a greasy taste to me that I think the medication is causing. Air popped doesn’t seem so bad but I still don’t have the appeal for it as much as I use to. I have… Read more

]]> 38a1eb6c4c544af47bb65c0e6ebc892e Bob Humphreys started the discussion Loss of taste in the forum Esbriet (Pirfenidone) https://pulmonaryfibrosisnews.com/forums/forums/topic/loss-of-taste/ Mon, 15 Jul 2019 14:20:17 -0500 Loss of taste

Has anyone taking Esbriet experience a strange metallic like taste from extended usage? Have you lost your taste buds? I’ve experienced both and have lost about 25 lbs since I started taking Esbriet. I’m still eating but nothing really tastes very good. Foods that I’ve always loved just don’t attract anymore. I know I need to eat so I eat out… Read more

]]> 92cb14a005a187f6b56d65b6486f1b8a Bob Humphreys replied to the discussion Exercising When You Have a Chronic Disease in the forum PF Life: 50+ https://pulmonaryfibrosisnews.com/forums/forums/topic/18989/#post-20261 Wed, 10 Jul 2019 00:58:04 -0500 Reply to Exercising When You Have a Chronic Disease

Mark,

Not sure about immaculate shape. I have my moments, I just have to keep pushing on. There are times when my breathing gets spooky enough that I think I need to go to the ER. Just try to calm myself down and work through it. Keep looking for things that might make me better. That’s one of the reasons for joining this forum to see if I… Read more

]]> 9a09abace7f52a69e76b26b24e984761 Bob Humphreys replied to the discussion Exercising When You Have a Chronic Disease in the forum PF Life: 50+ https://pulmonaryfibrosisnews.com/forums/forums/topic/18989/#post-20239 Tue, 09 Jul 2019 17:36:49 -0500 Reply to Exercising When You Have a Chronic Disease

Just back from the gym and two workouts. Did 1.5 miles in 33 minutes in the first set then did some muscle toning with weights to try and stay toned, it all works together. Then back on the treadmill for another 1.5 miles in 30 minutes with some more resistance weights. I’ve never had to be on oxygen and my readings are always high when checked.… Read more

]]> f520676baddb1b04dc457fe69f682450 Bob Humphreys posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/13585/#acomment-13587 Sun, 07 Jul 2019 01:00:36 -0500 Not sure yet. Lung doctor said we’d be doing a CT in the next month or so to compare to the last one to see if the scarring has slowed down any. Esbriet leaves a funny taste in my mouth and affects my smell. Smell and taste is like the smell from plastic that’s not microwave safe. Not sure how it reacts with others.

In reply to - Bob Humphreys posted an update Mark, I’ve been on the Esbriet for about 15 months. Was 158 when I started and now down to 132. Have added smoothies into my daily diet to try and add weight. Working on it, […] ]]> e24db687303beb435cf0eda8b22e5664 Bob Humphreys posted an update: Mark, I've been on the Esbriet for about 15 months. Was […] https://pulmonaryfibrosisnews.com/forums/activity/p/13585/ Sat, 06 Jul 2019 17:44:58 -0500 Mark, I’ve been on the Esbriet for about 15 months. Was 158 when I started and now down to 132. Have added smoothies into my daily diet to try and add weight. Working on it, both doctors know. Always a work in progress.

]]> 3 3fd0d04ba2a26bc8253614c4e473ec6d Bob Humphreys replied to the discussion Exercising When You Have a Chronic Disease in the forum PF Life: 50+ https://pulmonaryfibrosisnews.com/forums/forums/topic/18989/#post-20205 Sat, 06 Jul 2019 16:26:19 -0500 Reply to Exercising When You Have a Chronic Disease

Long time runner that first discovered a problem with my breathing because I was a runner. I had been shut down from exercise after 4 eye surgeries in 2008. When I was cleared to start again during my first run I labored to breath. Thought it was being shut down for so long. Not long after I had an episode at night where I couldn’t breath and… Read more

]]> cd168c436a97152323e57a7cefa4516f Bob Humphreys became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/13522/ Thu, 04 Jul 2019 13:08:18 -0500 1 42a6288724ad86049e1141a5fa6bbc54 Bob Humphreys updated their profile https://pulmonaryfibrosisnews.com/forums/activity/p/13516/ Wed, 03 Jul 2019 13:36:41 -0500 0