I am forever grateful for this forum. I am sitting in the hospital not even 1 year into my diagnosis of my ILD and I am most assuredly facing lung transplant, as all the doctors who have seen me at my latest admittance (I was admitted Monday and it is now Sunday) have mentioned that it is the next step, an inpatient referral for a lung… Read more

Vishal thank you for reaching out and creating this topic. I have recently been experiencing a decrease in my oxygen saturation. I was diagnosed with ILD in July of 2020. I had Covid-19 the last part of November 2020. Since the Covid I have been struggling with desaturation at 5 liters at home I would desaturate to 50 on my pulse oximeter. I… Read more

<p dir=”ltr”>Char,</p>
<p dir=”ltr”>I’m currently sitting in the hospital again. I was given my initial biopsy results  they were inclusive for a positive ild/ipf diagnosis or cause. They are going to do a open lung biopsy which is more invasive but does have better test results. Hopefully I will be able to have it done tomorrow 🙏 😌.  There is… Read more

Thanks Char and Karen for you advise and responses! Today I decided to go back to the walk in clinic. My o2 sat dropped to the 50s on Sunday while preparing for a shower and again last night while getting ready for bed. All while on 2 liters of o2. I decided I had waited enough and was definitely not getting any answers or any better. … Read more

Hi!

I was admitted to the hospital July 23, and had a lung biopsy via bronchoscopy done on July 27th.  While in the hospital I had a full panel of blood work,  CT scan and x-ray done. They did mention ILD and RLD as my prognosis.  My question is… how long is the usual wait to receive test results from a biopsy done via bronchoscopy?  I have… Read more

Hello all!  My name is Bobbie, I am a 40yo recently diagnosed with ILD and RLD.  I am currently waiting on biopsy results to discover causes or if there is a cause of my illness and/or a definite diagnose.  I have 2 kids, 12 and 17, and a wonderfully supportive husband. I am very new to this disease and am very interested in learning everything… Read more