Pulmonary Fibrosis News Forums | Boonie | Activity https://pulmonaryfibrosisnews.com/forums/members/boonie/activity/ Activity feed for Boonie. Sun, 12 Apr 2026 00:23:53 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 c3f006dbb711956b81b69b0e585727ef Boonie replied to the discussion Biggest piece of advice for a new IPF patient in the forum Pulmonary Fibrosis Awareness & Advocacy https://pulmonaryfibrosisnews.com/forums/forums/topic/biggest-piece-of-ipf-advice-for-a-new-ipf-patient/#post-37045 Wed, 15 May 2024 03:07:09 -0500 Reply to Biggest piece of advice for a new IPF patient

Excellent advice! My husband has DrGanesh Raghu at UW Hospital in Seattle! He is considered the international expert on IPF and told us the sooner the better with OFEV or Espiernt )sp! So far 8 years and no supplemental oxygen !!!

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