Forum Replies Created

  • Bill Rotureau

    Member
    May 11, 2019 at 11:03 am in reply to: Different Types of Fatigue for Patients with PF.

    3 years in since diagnosis of IPF. Oxygen 24/7 @ 6lpm. Taking Ofev since diagnosis. Age now 74. Fatigue is my new normal. Better some days, don’t want to move on some. Hurt my back and am almost recovered and that stopped my exercise for the last 3 months. When exercising (3+ miles on a recumbent stationary bike, multiple reps with light hand weights) the fatigue was lessened as my stamina improved. Hope to get back into my exercise routine soon.

    My numbers  from my last PFT were FVC 50%, DLCO 24% and those are steady since diagnosis give or take .02%.

    But fatigue is my normal now and I adjust my expectations accordingly. BTW, I have been on Hospice for three months now.

  • Bill Rotureau

    Member
    May 9, 2019 at 4:15 pm in reply to: Your Most Difficult ADLs as a Patient with Pulmonary Fibrosis.

    Toughest thing for me is taking a shower. Can still do it but only every other day. Standing for prolonged periods like cooking, etc., is also draining. Actually, most daily activities that I used to take for granted before going on oxygen 24/7 are now a chore. But, that is my normal (can’t say new as I have been at this for 3 years now).

Report

Harassment or bullying behavior
Contains mature or sensitive content
Contains misleading or false information
Contains abusive or derogatory content
Contains spam, fake content or potential malware

Block Member?

Please confirm you want to block this member.

You will no longer be able to:

  • See blocked member's posts
  • Mention this member in posts
  • Invite this member to groups
  • Message this member
  • Add this member as a connection

Please note: This action will also remove this member from your connections and send a report to the site admin. Please allow a few minutes for this process to complete.

Report

You have already reported this .