[bruce-f]

Hi everyone—I am new to the illness, the medicine, and to this group.  I am working hard to manage appropriate food intake while on OFEV.

I hope there is an active discussion board about nutrition here; I will look and report back to this thread!

Best wishes to all of you!

[bruce-f]

Sorry to hear of your loss.

When the time feels right, I hope you will share something if Ernie Kully’s life with the board.

Be well,

 

JB Fort

[bruce-f]

Here  is an article on familial IPF that covers some of the questions raised on this thread.

I was diagnosed with IPF this spring.  As the son and grandson of IPF patients, and as the father of young adult children who May of may not have a genetic predisposition to develop IPF at some point, I have asked my pulmonologist about genetic testing.

We are likely to pursue this at some point—my doctor  mentioned a lab in Canada that does this testing—but testing would follow genetic counseling and education.

My kids are in their early twenties, so we do not feel the need to act on this at the moment.  I am very interested in adding data to studies about familial IPF.

Best wishes to all—

Bruce

[bruce-f]

Thank you!  That is very helpful.  I struggle with the morning dose and may ask about moving to a 100/150 routine each day.  Good luck to one and all as we navigate our way through the days!