Pulmonary Fibrosis News Forums | Brian Dickinson | Activity https://pulmonaryfibrosisnews.com/forums/members/bsdickinson/activity/ Activity feed for Brian Dickinson. Wed, 22 Apr 2026 02:03:37 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 ef219ec647bd736cb439a0d919987442 Brian Dickinson replied to the discussion Do you attend PF support groups in the forum Healthcare Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/do-you-attend-pf-support-groups/#post-38610 Tue, 08 Jul 2025 21:10:30 -0500 Reply to Do you attend PF support groups

Thanks!

]]> a9554d8428b6156df9f3aceafb62d698 Brian Dickinson replied to the discussion Do you attend PF support groups in the forum Healthcare Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/do-you-attend-pf-support-groups/#post-38604 Mon, 07 Jul 2025 22:22:24 -0500 Reply to Do you attend PF support groups

Hi. Are you still conduction support group sessions? Would be interested in getting information on these. Thank you. Brian Dickinson

]]> 33f5135bb114f7450e337a6cf89bea79 Brian Dickinson replied to the discussion Recent Pulmonary Hypertension with ILD diagnosis, how can I manage this? in the forum PF Communities https://pulmonaryfibrosisnews.com/forums/forums/topic/recent-pulmonary-hypertension-with-ild-diagnosis-how-can-i-manage-this/#post-38213 Fri, 18 Apr 2025 14:39:05 -0500 Reply to Recent Pulmonary Hypertension with ILD diagnosis, how can I manage this?

I recently had a bi-lateral angiogram. They measured pressure between the heart and lung and I was dignosesd with PH. Pulmonary doc prescribed nebulized Tyvaso. Said there was some evidence that Tyvaso may also be helpful to IPF situation (slowing progression?). Medicare Part B (because the nebulizer is considered durable medical…

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]]> 2dede89c52320c222724d3bf07c1662d Brian Dickinson replied to the discussion Ofev issues in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/ofev-issues/#post-36673 Thu, 22 Feb 2024 23:14:01 -0600 Reply to Ofev issues

I have been on Esbriet for about 6.5 years now. I have been lucky in not having side effects. If your doctor will only prescribe Ofev, maybe a different doctor would be more accommodating. I don’t understand the reason he/she is unwilling for you to try Esbriet. If reasons are medically sound then soldiering through with Ofev may be best path.…

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]]> a9eb2122cfadd9d877a7906a8954a847 Brian Dickinson replied to the discussion Remembering if you took Medications in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/remembering-if-you-took-medications/#post-30339 Tue, 02 Nov 2021 23:42:26 -0500 Reply to Remembering if you took Medications

I have an Apple Watch and iPhone. I use an app called “Alarmed” which I can see on my phone and my watch. The alarms I set will cause reminders to be seen (and felt) on my watch and my phone. I use it for meds and repeating chores and it works great. I would not be compliant with all of my meds without these tools and I highly recommend them. Cheers.

]]> a1074e21936d2d2f01a971462edd5f8d Brian Dickinson replied to the discussion N115 nasal spray in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/n115-nasal-spray/#post-30249 Wed, 20 Oct 2021 14:55:57 -0500 Reply to N115 nasal spray

I think either being part of a trial or waiting for testing to be complete is prudent. My pulmonologist told me that before Esbriet/Ofev, doctors prescribed steroids for IPF. They discovered later that steroids actually made the IPF worse. Just like with COVID, it seems the medical community learns more as time progresses and therapy/regimens… Read more

]]> 6c13adc534c48e8b3beab632606898f7 Brian Dickinson became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/30130/ Wed, 20 Oct 2021 14:42:57 -0500 1