Brian Dickinson
Forum Replies Created
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I have been on Esbriet for about 6.5 years now. I have been lucky in not having side effects. If your doctor will only prescribe Ofev, maybe a different doctor would be more accommodating. I don’t understand the reason he/she is unwilling for you to try Esbriet. If reasons are medically sound then soldiering through with Ofev may be best path. Good luck with you journey.
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I have an Apple Watch and iPhone. I use an app called “Alarmed” which I can see on my phone and my watch. The alarms I set will cause reminders to be seen (and felt) on my watch and my phone. I use it for meds and repeating chores and it works great. I would not be compliant with all of my meds without these tools and I highly recommend them. Cheers.
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I think either being part of a trial or waiting for testing to be complete is prudent. My pulmonologist told me that before Esbriet/Ofev, doctors prescribed steroids for IPF. They discovered later that steroids actually made the IPF worse. Just like with COVID, it seems the medical community learns more as time progresses and therapy/regimens can change as further understanding is gained.