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Denny Eliassen replied to the topic Life span in the forum Diagnosis Information and General Questions 2 weeks, 2 days ago
Pam, every ILD is different. I was diagnosed in 2016 and I knew I had a lung issue since I play hockey. It was progressing fairly rapidly so I went to the pulmonologist had a CT scan and got diagnosed. I did some research and found a company with many documented cases of improvement with the use of Chinese herbs (WEI Labs). Their protocol is a 90…[Read more]
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Denny Eliassen replied to the topic Life span in the forum Diagnosis Information and General Questions 2 weeks, 2 days ago
Pam, every ILD is different. I was diagnosed in 2016 and I knew I had a lung issue since I play hockey. It was progressing fairly rapidly so I went to the pulmonologist had a CT scan and got diagnosed. I did some research and found a company with many documented cases of improvement with the use of Chinese herbs (WEI Labs). Their protocol is a 90…[Read more]
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Denny Eliassen posted an update 2 weeks, 2 days ago
@gavpowers77 I have breathlessness and it’s because of long Covid that I have had since Covid 15 months ago. My allergies have made it worse but my allergist put me on trelegy and it has made a big difference, I think because of the steroid.
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Denny Eliassen posted an update 3 weeks ago
@deem It sounds like you might have long Covid. I’ve been struggling with it for 15 months and I have breathlessness and some brain fog. I have had IPF since 2016, it came on quick but I knew I had something and was able to diagnose the problem when I was playing hockey. I thought my hockey was done but I did some research and found a company i…[Read more]
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Steve Dragoo replied to the topic Serrapeptase and nattokinase and Ofev in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 month, 1 week ago
Hi Cecil,
Not sure if anyone answered you. I have been taking Serrapeptase for almost 5 years. But I strongly tell you NEVER take it close to any other pills or food. It dissolves those faster than normal. That can be really bad news with other pills (ask me how I know) and a waste if taken with food.
I slowly ramped up to…[Read more]
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Steve Dragoo replied to the topic Serrapeptase and nattokinase and Ofev in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 month, 1 week ago
Hi Neha,
I just saw the study going on with serrapeptase. Do you have any results to share? Please use my screen name (like yours above) so I will get notified.
stay well…
Steve -
Steve Dragoo replied to the topic Use of Aspirin. in the forum
Research and Development 1 month, 2 weeks ago
Hi Joe,
I just posted a long answer here but it looks like it disappeared. Please let me know if you can see it. Otherwise, I will try to recreate it for you.
Stay well…
Steve -
Steve Dragoo replied to the topic Use of Aspirin. in the forum Research and Development 1 month, 2 weeks ago
Yes I consider the placebo effect on all I take but that would wear off over time as ”reality” sets in.
Having worked in medical in the USN, I try to be acutely aware of mental/physical changes but at best those will be subjective for several reasons. The progressiveness of IPF seems to slowly affect the brain and of…[Read more]
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Steve Dragoo replied to the topic Shortness of breath and how to catch it in the forum Diagnosis Information and General Questions 1 month, 3 weeks ago
Hi Frank,
What is your heart rate? PAH cause my heart to work hard which creates shortness of breath sometimes. Also, O2 bottles go to 11+ L, and try wearing a face mask.
Stay well.
Steve -
Steve Dragoo replied to the topic Use of Aspirin. in the forum
Research and Development 1 month, 3 weeks ago
Hi Joe,
I’ve been taking baby aspirin enteric coated for a very long time. After a white paper was published here sometime last year, I increased to 3 baby aspirin 2x with no noticeable side effects and I take many other supplements as well.
Stay well…
Steve -
Steve Dragoo replied to the topic Comparing portable oxygen concentrators in the forum Living with Pulmonary Fibrosis: 50+ 2 months ago
Hi Friend,
Glad to see you here. Fortunately, I am not on O2 other than at night and on the rare occasion, I need it wandering at home. Sometimes walking I wish I had one but that is mostly my heart rate jumping a lot – don’t walk far anymore either.
Somewhat my fear is the very long flight from the Philippines back to t…[Read more]
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Kathleen Ryan replied to the topic How to Decide When to Stop Working with Pulmonary Fibrosis. in the forum Employment & Pulmonary Fibrosis 2 months ago
I was diagnosed in 2020. At that I was teaching online. I loved it! Being a teacher was part of my identity. By mid 2021 I was unable to talk with enthusiasm when teaching elementary students due to shortness of breath. I tried cutting back hours, but it seemed sleep issues increased at that same time with coughing and gerd attacks. Ulti…[Read more]
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Steve Dragoo and
Jeff Molloy are now friends 3 months, 4 weeks ago
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Steve Dragoo replied to the topic Who Has Inspired You? in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 months ago
Hello Friend,
I think of you every day and know winter is a struggle – for me, it is usually February as I get cabin fever and want to be outside even sleeping in the snow as I did when younger. On the other hand, every time I show my wife a picture of some beautiful snow-covered bucolic landscape her comment is, ”I will…[Read more]
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Steve Dragoo posted an update 4 months, 1 week ago
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Steve Dragoo replied to the topic Larry Runyon in the forum In Loving Memory 4 months, 1 week ago
Samuel,
You are not alone in this journey. Be blessed and reassured you will meet again.
Stay well…
Steve -
Kathleen Ryan replied to the topic PFTs and a Reduction in DLCO Number. in the forum Upcoming Medical Appointments: Q&As 4 months, 2 weeks ago
I just found this post, and its relevant to me. My DLCO scores were severe at 38 for the past two years, and went to 43 with my most recent pft. ( I was diagnosed in 2020) I’ve tried to find answers, and I found this article . https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4419325/. I have an appointment in a couple weeks, and this is one of my top…[Read more]
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Steve Dragoo replied to the topic Metformin Useage as Treatment for IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 months, 2 weeks ago
Hi Michael,
A number of pharmacies will provide metformin at a love cost probably about the same as the co-pay but I do not know if they require a prescription.
I have used metformin for 12 years and can’t tell if it has helped my IPF or not. I do use a bucket of supplements daily however.
Stay well…
Steve -
Steve Dragoo replied to the topic just want to share some of my experience in the forum Canadians Living with Pulmonary Fibrosis 5 months ago
Hi Jaime,
I had phlegm but nearly stopped it by using Serrapeptase. Started it over 4 years ago and take 720,000 SU nightly on an EMPTY stomach and NO other meds for 3 hours on either side. You can start at 480,000 SU.
Serrapeptase sees pills as dead protein, it dissolves them faster. Did that once with niacin – wish I h…[Read more]
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Steve Dragoo replied to the topic New Treatment in Phase 3 looks like it might be promising in the forum Join the Discussion: Welcome to all PF/IPF Patients 5 months, 1 week ago
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