Biography

Name

Jo
Nickname

carerjo
Year of Birth

1967
Gender

Female
Location

Uk
Relationship

Caregiver
Short Bio

Hi all

So 5.9.2019 my husband was diagnosed with IPF. He went to work in the morning gardening. Home at 2pm and couldn’t breath.  That was it lung test 21.10.19 showed 54% capacity and now he is pretty much immobile due to shortness of breath and oxygen demands when moving. Po2 two days ago was 5.9. So now on 3.5 litres at rest and between 6 and 8 when moving at all. Has anyone else had it happen this fast. Also dropped over 2 1/2 stone in 2 months.
Type of Diagnosis

IPF
Treatment / Medical Facility

Prednisone and oxygen therapy
Current medication regimen

Only been on oxygen for 10 days as this was missed.
Lung transplantation status

currently in evaluation process
Supplemental Oxygen

yes
Best advice for PF symptom management

Use a hand fan to help resaturate when your sops drop to 57
Are you currently taking an anti-fibrotic medication?

no
How did you find us?

Other
How long have you or the person that you are caring for had PF?

Chronic but diagnosed 5th Sept 2019
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