Biography

Name

Carly Venzke

Nickname

carly-venzke

Year of Birth

1974

Gender

Female

Location

Alice Springs

Relationship

Patient

Short Bio

I was diagnosed with Pulmonary fibrosis in September last year.  A year on since my diagnosis, things are going down hill quite fast.  I am yet to be put on oxygen, but I am in and out of hospital.  I have a chest infection every other week, as soon as I’m clear, I get another one.  Reading the forums helps as I now know we all suffer differently and progress differently.

Type of Diagnosis

IPF

Lung transplantation status

eligible

Supplemental Oxygen

no

Are you currently taking an anti-fibrotic medication?

yes

How did you find us?

Physician

How long have you or the person that you are caring for had PF?

1 year

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