Biography

Name

Carolyn Birmantas

Nickname

carolyn-birmantas

Year of Birth

1944

Location

Midwest Illinois

Relationship

Family

Short Bio

My husband was diagnosed with PF in 2018 but somebody forgot to inform us. We just found out in Sept. when he was having difficulties breathing .It was quite a shock to both of us. I called his primary care and asked to be referred to a Pulmonologist and started searching the internet for information.I bounced between anger And frightened tears as I read the prognosis.

Now we both have come to terms with his illness, as if we have any other choice. My faith is the only thing thing that helps me when I feel like I cannot bare to lose my man.I pray for a miracle . At his last doctor visit we were told Allan is entering stage 3.

Type of Diagnosis

IPF

Treatment / Medical Facility

St, Mary’s clinic in Galesburg, Ill

Current medication regimen

Oxygen 24/7, Just started on Symbicort 2xday. Albuterol inhalation twice daily and on a steroid.

Lung transplantation status

ineligible

Supplemental Oxygen

yes

Best advice for PF symptom management

Pray and take each day as it comes

How did you find us?

Other

How long have you or the person that you are caring for had PF?

Since 2018

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