Pulmonary Fibrosis News Forums | Cas | Activity https://pulmonaryfibrosisnews.com/forums/members/cas/activity/ Activity feed for Cas. Wed, 22 Apr 2026 18:29:45 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 09713342266ffc269a26dd0bc4024f23 Cas posted an update: I have had to come off pirfenidone due to rashes. I was […] https://pulmonaryfibrosisnews.com/forums/activity/p/44933/ Sun, 18 May 2025 06:40:45 -0500 I have had to come off pirfenidone due to rashes. I was on Nintedanib previously but suffered a stroke which may or may not have been caused by the medication. The ILD team have asked me which medication I would prefer to be on. This is a real dilemma for me. On the face of it, it makes no sense to go on to a medication that can cause bleeding…

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]]> 0 ef278c2db03fca87f9885b526caa0c0c Cas replied to the discussion Serious Side effects of OFEV in the forum Using Our Forums https://pulmonaryfibrosisnews.com/forums/forums/topic/serious-side-effects-of-ofev/#post-38256 Mon, 28 Apr 2025 18:26:42 -0500 Reply to Serious Side effects of OFEV

I was diagnosed with ipf a year ago and prescribed ofev. All was fine until October last year when I had a stroke. I was immediately taken off Ofev as apparently stroke is a rare side effect. I was put on pirfenidone but I am experiencing a rash which has covered the upper part of my body. It is really itchy and the spots are changing to…

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]]> 0c9fb23cbafcce92c23e71e20cd966db Cas became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/44696/ Mon, 28 Apr 2025 17:50:22 -0500 1