Charlene Marshall replied to the topic Fevers & IPF Patients: Let's Talk About Em' in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 1 month ago
Thank you so much Karen! I really appreciate your kind words, and happy to report that indeed the fevers are subsiding thankfully. I hope you’re doing alright during this tough time. Hang in there! Char.
Charlene Marshall posted a new activity comment 3 years, 2 months ago
Hi @casey – so nice to hear from you Karen! Thanks for reading my column and circling back here for discussion; yes very timely in the transplant centers decision to pause organ transplants. I think it is the wise thing to do, and likely your cancellation was best as well. I like how you phrased that “didn’t feel it was my time to begin that…[Read more]
Charlene Marshall replied to the topic Finding Some Good Amidst the COVID-19 Crisis in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 2 months ago
I love this Karen! Thank you @casey for helping me think of the ‘small things’ that might mean a great deal to all of us amidst this crisis. Hanging onto anything right now is important, and I am glad you are finding some joy in your day again with choosing the fragrances you enjoy. Good for you. Thanks for sharing 🙂
Charlene Marshall posted a new activity comment 3 years, 3 months ago
Thanks so much for reading and for reading my columns. A shoe horn is a great idea! I’d never thought of that, and actually had a giggle at a friend this past summer who introduced me to what that even was. However, I can see it being very effective for my struggles now. Thanks for sharing that tidbit of what helps you! We all…[Read more]
Charlene Marshall replied to the topic Post-meal fatigue in the forum Living with Pulmonary Fibrosis: 50+ 3 years, 4 months ago
Thank you for sharing this @noah-greenspan !
Tagging the lovely members of our forums who were inquiring about this so they can see this response too. Enjoy your day and thanks for chiming in with this information.
@wendy-dirks @reglois @casey @nanm
Kristin replied to the topic Oxygen Questions in the forum Diagnosis Information and General Questions 3 years, 6 months ago
Thank you so much for the suggestions with regard to dressing my mom, while she is wearing her oxygen. It is a learning experience for us both. I try to allow her to dress herself to give hear some sense of independence. I like to do things myself, and my mom feels the same. I rigged up a hook in the bathroom that con…[Read more]
I think the walk test should prove informative for the folks doing it.
I also thought of a couple of other things that help some with my SOB. I use a “grabber” tool to pick things up off the floor or, if I really need to pick something up myself due to the size, I try to squat down rather than bend over. I learned the squatting trick when I had…[Read more]
All really good ideas Karen, thanks for sharing! I need to remember to squat to pick things up instead of bending over. Leaning forward when I am closer to the ground really makes me dizzy and feel unwell. This tip will help!
I’ll keep the forums posted on how enlightening the walk test is. Should be be interesting for folks.
There is so much to figure out with this. Happy to be able to pass along a few tricks that might help. I will really be interested in the results of the walk test. Take care!