Forum Replies Created

  • Chris O’Hanlon

    Member
    October 22, 2022 at 6:43 am in reply to: Tyvaso for IPF

    Hi Charlene,

    as I mentioned before I am new to the sight and just selected for the Tyvaso trial, I don’t know if I have the drug or placebo. This is my 2nd week and I am up to 6 puffs 4 times a day, I feel good in the mornings and I get my walks and swims in then. While walking I am on my oxygen pack, obviously not with swimming. I really can’t say I have side affects but I will say that I am breathing better and I have started walking farther!
    I try to get most of my chores done in the morning and early afternoon because I run out of gas in the afternoon. In the early evening I walk again, make dinner and fall into bed exhausted.
    I guess what I am saying is if I am on the placebo I will take it because it really helps me get through my days.