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Cisco Rafael

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@ciscorafael

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  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic Mental Health & Chronic Illness Advice in the forum Living with Pulmonary Fibrosis: 50+ 1 week ago

    Thanks for sharing your story with us, Nina! I’m glad you sought out a second opinion from another doctor as well as I was shocked to read one actually gave you a year you’d likely live until – that’s absurd in my opinion. Glad the second doctor was so helpful and that you proactively took care of yourself by doing things like putting in the swim…[Read more]

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic Zinc in the Role of Lung Fibrosis in the forum Pulmonary Fibrosis Awareness & Advocacy 1 week ago

    Thank you all for sharing your personal experience with Zinc, along with your opinions on the article… I found it very interesting as well! Similar to Chuck, I’m curious if anyone has brought this up with their doctor and obtained any feedback? It’s a credible article from a reputable site so hopefully a physician out there will read/listen to…[Read more]

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic Zinc in the Role of Lung Fibrosis in the forum Pulmonary Fibrosis Awareness & Advocacy 1 week ago

    Here it is Doug:

    https://www.cedars-sinai.org/newsroom/zinc-found-to-play-an-important-role-in-lung-fibrosis/

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic Zinc in the Role of Lung Fibrosis in the forum Pulmonary Fibrosis Awareness & Advocacy 1 week ago

    I agree @christie-patient… this article was super interesting to read, not something I’d heard of before, even though I knew of many of the other benefits.
    Char.

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 week ago

    Hi Millie,

    Oh this is interesting, thanks for sharing! I had similar thoughts as you but glad to hear it’s helpful. I know a lot of people struggle with diarrhea on Ofev so this is good information to have and share.
    Take care,
    Char.

  • Profile picture of Charlene Marshall

    Charlene Marshall started the topic Zinc in the Role of Lung Fibrosis in the forum Pulmonary Fibrosis Awareness & Advocacy 1 week, 3 days ago

    Photo credit 
    I appreciate the members of this forum for a magnitude of reasons. One is being able to connect with everyone about what its truly like to live with this terrible lung condition, and another is because members are so willing to share their findings on things like: clinical trials, supplements to help manage symptoms and research t…[Read more]

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic Top 4 Words You'd Use to Describe IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 week, 6 days ago

    Absolutely unfair! Great words Denise, thanks for sharing!

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic Top 4 Words You'd Use to Describe IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 week, 6 days ago

    Thank you for sharing Denise, it’s always refreshing to hear of positive experiences with physicians and how they can help us on our journey. Sorry to hear you’re dealing with pain, but glad you have a good doctor in your corner.

    Take care,
    Char.

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic Qualities of a Supportive Caregiver in the forum Caregivers and Spouses 1 week, 6 days ago

    @anne-tarantino

    Hi Anne,

    So nice to hear from you! Thanks for writing and contributing to this thread, though sorry to hear your PF is getting worse and your husband is picking at you. It’s so hard for others to understand what feeling short of breath and/or exhausted all the time is like, and on the flip side, it’s exhausting for us to navigate…[Read more]

  • Profile picture of Charlene Marshall

    Charlene Marshall started the topic Qualities of a Supportive Caregiver in the forum Caregivers and Spouses 2 weeks, 1 day ago

    Living with a life-threatening disease, such as idiopathic pulmonary fibrosis (IPF) doesn’t come with an instruction manual. Unfortunately, this leaves patients and caregivers to figure it out as they go. Just as unique as the disease is to each patient, so too is how they choose to live with it.

    That being said, there are some con…[Read more]

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic How to Decide When to Stop Working with Pulmonary Fibrosis. in the forum Employment & Pulmonary Fibrosis 2 weeks, 3 days ago

    Hi Jeff,

    Thanks for writing and contributing to this topic thread. Wonderful to hear your work from home situation has been conducive to you being able to continue working. That is great and I’m glad you haven’t been faced with the decision whether or not to stop working. I am lucky as well and have a very flexible workplace, and am primarily…[Read more]

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic Mental Health & Chronic Illness Advice in the forum Living with Pulmonary Fibrosis: 50+ 2 weeks, 3 days ago

    @philipryan

    Hi Phil,

    Thanks so much for sharing your thoughts on this topic, and for your insightful perspective. I know some people will find it comforting to read your words for sure 🙂
    I was the facilitator for Noah’s new book and we discussed religion a lot. There are some references to it of course in some of the chapters written by authors…[Read more]

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic How to Decide When to Stop Working with Pulmonary Fibrosis. in the forum Employment & Pulmonary Fibrosis 2 weeks, 3 days ago

    Thinking of you Rhonda as you navigate the next stage and figure out what is your new normal. Certainly not an easy task. Thanks for sharing your story and know that we’re here for you.

    Take care,
    Char.

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic How to Decide When to Stop Working with Pulmonary Fibrosis. in the forum Employment & Pulmonary Fibrosis 2 weeks, 3 days ago

    @vmcurrie62

    Hi Virginia,

    Thank you for taking the time to write and contribute your thoughts to this important thread. I remember your story of being a cardiac nurse, and the difficulties you’ve faced in your profession following this cruel diagnosis. I’m so glad first of all that you aren’t experiencing any side effects of Ofev, that is…[Read more]

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic Mental Health & Chronic Illness Advice in the forum Living with Pulmonary Fibrosis: 50+ 2 weeks, 3 days ago

    Hi Debra,

    Thanks for contributing your thoughts to this thread. It certainly is hard to find that balance of acceptance and being thankful; it’s a process that sometimes I feel like I’ve done well and other days not at all. Everyone processes things differently, do you think you and your husband could work through it with the help of a…[Read more]

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic Top 4 Words You'd Use to Describe IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 weeks, 3 days ago

    Hi David,

    Thanks for contributing your words to this topic thread. Cruel is one word  I often use to describe IPF, so I certainly agree with you! Thanks for sharing.

    Char.

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic Top 4 Words You'd Use to Describe IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 weeks, 1 day ago

    Hi Phyllis,

    Underdiagnosed is most certainly (and unfortunately!) a good word used to describe IPF. Thanks for sharing.
    Char.

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic Mental Health & Chronic Illness Advice in the forum Living with Pulmonary Fibrosis: 50+ 3 weeks, 3 days ago

    So true Tonya, I can imagine many others can relate to this post like I can! It almost seems impossible to me that a diagnosis like this can’t erode some mental health difficulties so its so important to take care of ourselves and each other! Thanks for writing and keep in touch.
    Char.

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic How to Decide When to Stop Working with Pulmonary Fibrosis. in the forum Employment & Pulmonary Fibrosis 3 weeks, 3 days ago

    So nice to hear from you, Don! Thanks for writing and contributing to this important but difficult thread. I really appreciate hearing the perspective you now have on your stressful practice and your decision to stop working, especially with it being in hindsight and having an opportunity to reflect. I know many others will also appreciate this as…[Read more]

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic How to Decide When to Stop Working with Pulmonary Fibrosis. in the forum Employment & Pulmonary Fibrosis 3 weeks, 3 days ago

    Hi Heather,

    Thanks for writing and contributing to this thread, it’s so hard to work with 02 and manage this disease! If you use the search function of these forums (right hand side of the main page) and type in the keywords you’re looking for, such as “disability” or “payments” some threads may come up with the information you’re seeking. Just…[Read more]

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This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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