I had IPF for 22 years prior to Txp. It was labeled HP (hypersensitivity pneumonitis) but no allergen was ever determined. I can guess the contributants but that’s the best I can do; it would have changed my course or treatment not at all. But I am struck by comments that obesity, diet, other lifestyle choices increase risk of the disease. Can…

Read more

Check with the hospital you will be using and see if they have a Peer Mentor program. These can be very helpful to put you in touch with someone who is living with a transplant. Also, a Transplant Support Group if you haven’t found one already. And this site can be helpful for general questions, too. If you happen to be going to the U of…

Read more

I was diagnosed with Hypersensitivity Pneumonitis and resultant Pulmonary Fibrosis  at age 40 and transplanted at age 62.  Four separate medical reviews including National Jewish in Denver.  Began using O2 about 2 years prior to surgery. Now 6.25 years post-Txp.

There IS HOPE! Don’t lose yours.

 

Happy to share! I am Six Years + 3 Months post double lung Txp.  My lungs were rejected by two others but came to me during what would have been my Final Days. I was dying. So we jumped at the opportunity despite the lack of adequate medical history on the donor. (Perhaps family-less? Institutionalized?) I’ll never know how or why a… Read more