@cliff-cleary
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Cliff Cleary replied to the topic How Pulmonary Fibrosis Impacts Patients at Various Life Stages in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 4 months ago
Hi Charlene,
I was first diagnosed with allergies and was treated for them for about 3-4 years, then emphysema for another 2 years. Then in 2015 I was diagnosed with IPF.
Last November I was rushed to hospital and diagnosed with Anca Vasculitis and nearly died. Funnily enough the Vasculitis has similar symptoms to IPF so at the time I thought it…[Read more]
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Cliff Cleary replied to the topic How Pulmonary Fibrosis Impacts Patients at Various Life Stages in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 4 months ago
Hi Charlene,
Firstly let me say that I marvel how you put so much into these forums and I admire how you are coping with this horrible disease at such a young age.
I’m 63 and was diagnosed in Sept 2015, that was after being misdiagnosed for a number of years. I have been struggling with chronic pain and depression since 2006 due to injuries f…[Read more]
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Cliff Cleary replied to the topic The IPF Patient's Experience with Prednisone in the forum Diagnosis Information and General Questions 3 years, 5 months ago
Hi Pamela,
Interesting to hear of your use of prednisone, my doctors are reluctant to keep me on them and at the moment I’m on a very low dosage. I’m currently taking 12.5mg per day.
I would like to know what dosage your pills are and what others are on. I’m in Australia and it doesn’t seem that prednisone is being used much for IPF here.
Cheers
Cliff
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Cliff Cleary posted a new activity comment 3 years, 6 months ago
Hi Charlene,
I don’t know of Tony but that’s only because I have been contacted by someone else. We have a seminar coming up on the 28th April so I should get to meet him then so I will introduce myself and tell him you said hello!I live in outer eastern suburbs of Melbourne, Victoria. I see the same transplant team that he probably would hav…[Read more]
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Cliff Cleary replied to the topic The IPF Patient's Experience with Prednisone in the forum Diagnosis Information and General Questions 3 years, 6 months ago
Hi All,
It’s quite an eye opener to read about other IPF sufferers experiences from another country, over here downunder we can sometimes be a bit behind. I have also found from reading articles and this forum and from other sufferers that medication and dosages can differ greatly.
If I find out if there’s any problems with Pirfenidone and Pred…[Read more]
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Cliff Cleary posted a new activity comment 3 years, 6 months ago
Thanks Charlene, I’m also a part of a group of IPF diagnosed gentleman only because we haven’t had any ladies join yet. We call ourselves the “Bung Lung Mob” I came up with the name as I wanted to try and have fun as well as sincere support.
Myself and another gentleman also do some phone call support for the Lung Foundation Australia around…[Read more] -
Cliff Cleary replied to the topic The IPF Patient's Experience with Prednisone in the forum Diagnosis Information and General Questions 3 years, 6 months ago
Hi Charlene,
I’m not sure there’s any reaction between Pirfenidone and prednisone, I’m still waiting to hear back from doctors.
While I was on 30mg prednisone it did help my IPF symptoms quite a bit, the only problem is I’m not sure if it was the Anca Vasculitis or IPF that was the major problem as they both have similar symptoms. The doctors…[Read more]
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Cliff Cleary posted a new activity comment 3 years, 6 months ago
Thanks Charlene, I’ve been reading your articles for a while now so I thought it was about time I joined in!
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I am so glad you have joined us Cliff! We’re all in this together, feel free to write any questions or post about topics you’re interested in learning more about. There is a wonderfully supportive group of folks on here who will help in any way we can.
Welcome again and I look forward to getting to know you a bit more through the forums.
Warm…[Read more]
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Thanks Charlene, I’m also a part of a group of IPF diagnosed gentleman only because we haven’t had any ladies join yet. We call ourselves the “Bung Lung Mob” I came up with the name as I wanted to try and have fun as well as sincere support.
Myself and another gentleman also do some phone call support for the Lung Foundation Australia around…[Read more]-
Hi Cliff,
That is amazing, thank you so much for sharing! Humour and fun amidst this diagnosis is so important, isnt it?
I actually have a wonderful story about the Lung Foundation Australia. Have you ever heard of a gentleman named Tony Hyams? He had IPF and had a life-saving double lung transplant in Melbourne at the Alfred in December 2016.…[Read more]
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Hi Charlene,
I don’t know of Tony but that’s only because I have been contacted by someone else. We have a seminar coming up on the 28th April so I should get to meet him then so I will introduce myself and tell him you said hello!I live in outer eastern suburbs of Melbourne, Victoria. I see the same transplant team that he probably would hav…[Read more]
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Cliff Cleary replied to the topic The IPF Patient's Experience with Prednisone in the forum Diagnosis Information and General Questions 3 years, 6 months ago
Hi Everyone,
I was diagnosed with IPF in September 2015, I was taking Pirfenidone until November 2017 when I was diagnosed with Anca Vasculitis. I was put on Prednisone for the new diagnosis and then taken off the Pirfenidone as doctors were concerned there might be a reaction with the two drugs.
I started on 30mg Prednisone and it was helping…[Read more]
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Cliff Cleary changed their profile picture 3 years, 6 months ago
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Hi Cliff, welcome to the PF forums. Thanks for joining us!
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Thanks Charlene, I’ve been reading your articles for a while now so I thought it was about time I joined in!
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I am so glad you have joined us Cliff! We’re all in this together, feel free to write any questions or post about topics you’re interested in learning more about. There is a wonderfully supportive group of folks on here who will help in any way we can.
Welcome again and I look forward to getting to know you a bit more through the forums.
Warm…[Read more]
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Thanks Charlene, I’m also a part of a group of IPF diagnosed gentleman only because we haven’t had any ladies join yet. We call ourselves the “Bung Lung Mob” I came up with the name as I wanted to try and have fun as well as sincere support.
Myself and another gentleman also do some phone call support for the Lung Foundation Australia around…[Read more]-
Hi Cliff,
That is amazing, thank you so much for sharing! Humour and fun amidst this diagnosis is so important, isnt it?
I actually have a wonderful story about the Lung Foundation Australia. Have you ever heard of a gentleman named Tony Hyams? He had IPF and had a life-saving double lung transplant in Melbourne at the Alfred in December 2016.…[Read more]
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Hi Charlene,
I don’t know of Tony but that’s only because I have been contacted by someone else. We have a seminar coming up on the 28th April so I should get to meet him then so I will introduce myself and tell him you said hello!I live in outer eastern suburbs of Melbourne, Victoria. I see the same transplant team that he probably would hav…[Read more]
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Cliff Cleary's profile was updated 3 years, 6 months ago
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Cliff Cleary became a registered member 3 years, 6 months ago
Hi Cliff,
That is amazing, thank you so much for sharing! Humour and fun amidst this diagnosis is so important, isnt it?
I actually have a wonderful story about the Lung Foundation Australia. Have you ever heard of a gentleman named Tony Hyams? He had IPF and had a life-saving double lung transplant in Melbourne at the Alfred in December 2016.…[Read more]
Hi Charlene,
I don’t know of Tony but that’s only because I have been contacted by someone else. We have a seminar coming up on the 28th April so I should get to meet him then so I will introduce myself and tell him you said hello!
I live in outer eastern suburbs of Melbourne, Victoria. I see the same transplant team that he probably would hav…[Read more]