Pulmonary Fibrosis News Forums | Clsyldy. | Activity https://pulmonaryfibrosisnews.com/forums/members/clsyldy/activity/ Activity feed for Clsyldy.. Wed, 15 Apr 2026 17:04:12 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 021345a72c3b5224849d7ddcfdf1e4c1 Clsyldy. replied to the discussion Boehringer Ingelheim 1015550 fibroneer study in the forum Treatments and Science https://pulmonaryfibrosisnews.com/forums/forums/topic/boehringer-ingelheim-1015550-fibroneer-study/#post-38205 Tue, 15 Apr 2025 20:40:42 -0500 Reply to Boehringer Ingelheim 1015550 fibroneer study

My husband has been on OFEV for 11 years. He is so fortunate he’s had no side affects. We are really looking forward to this fibro drug being approved by fda. The patent is coming up for ofev so, I’m not surprised they have another drug in the forefront. My husband has had violent cough off and on for the 11 years. He’s tried all the…

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]]> 729a6093a5d0dc65d5ab6f37129e4288 Clsyldy. replied to the discussion Ofev - diarrhea after some time? in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/ofev-diarrhea-after-some-time/#post-38078 Fri, 14 Mar 2025 21:00:39 -0500 Reply to Ofev - diarrhea after some time?

My husband has been on ofev since 2014. 150 twice a day It has worked well. He has had no side affects so we are lucky. His ipf has progressed very slow. He does supplement oxygen at night as he has sleep apnea . He does supplement 3 liters of oxygen when he is physically active or working outside. He still does not need oxygen when resting…

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