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@constancedc1
In reading the question about what a newly diagnosed person should have for tools to help adjust, I suggest the following:
1, The Friends and Family information card from the Pulmonary Fibrosis Foundation. Short, concise and accurate.
2. A friend who can listen and listen as you talk through it.
3. A support group that gives you […] View
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Charlene Marshall replied to the topic When You Don't Want to Talk About PF Appointments in the forum Join the Discussion: Welcome to all PF/IPF Patients 9 months ago
Beautifully said @constancedc1 ! Thanks for taking the time to write out and share your thoughts with the forum. Information is key to living with this disease, because we can tailor our actions and behaviours to try and live the best we can with it when we know how to do that. I’ve done several rounds of pulmonary rehabilitation and while I find…[Read more]
