Pulmonary Fibrosis News Forums | CRE | Activity https://pulmonaryfibrosisnews.com/forums/members/cre/activity/ Activity feed for CRE. Tue, 28 Apr 2026 14:08:11 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 9cf17e0302546fcab374a20726dda964 CRE started the discussion Deupirfinadone and nausea in the forum Healthcare Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/deupirfinadone-and-nausea/ Fri, 20 Feb 2026 22:34:52 -0600 Deupirfinadone and nausea

I have been on deupirfinadone for over 3 years (I was on the drug during the clinical trial) and my pulmonary tests have been stable. But… I’m nauseous all the time. I would like to hear if anyone has this problem and if they have found a solution.

]]> 592ae8df2e59e0e5bc9d334fa9cd58f0 CRE replied to the discussion IPF and Bronchiectasis in the forum Using Our Forums https://pulmonaryfibrosisnews.com/forums/forums/topic/ipf-and-bronchiectasis/#post-38484 Sun, 08 Jun 2025 17:16:55 -0500 Reply to IPF and Bronchiectasis

Thanks Steve. I will be researching it.

Chuck

]]> 4fb9d086356c6518286d22da219c9a63 CRE replied to the discussion IPF and Bronchiectasis in the forum Using Our Forums https://pulmonaryfibrosisnews.com/forums/forums/topic/ipf-and-bronchiectasis/#post-38479 Fri, 06 Jun 2025 23:04:43 -0500 Reply to IPF and Bronchiectasis

Since I posted, my pulmonologist prescribed hydrocodone and it literally stopped the cough almost immediately. The trial is still active, but I have completed my part of the blind study. It turns out I had deuperfinidone all along and am continuing with it. I had some issues with nausea but seem to have gotten over that.

]]> c1666e86f25e9319264a7f74a2c8024c CRE started the discussion IPF and Bronchiectasis in the forum Using Our Forums https://pulmonaryfibrosisnews.com/forums/forums/topic/ipf-and-bronchiectasis/ Thu, 05 Jun 2025 16:37:54 -0500 IPF and Bronchiectasis

My recent CT showed mild bilateral bronchiectasis. I”ve had a large increase in muceus and really violent coughing which is almost continuous and very debilitating. I have tried mucinex, robitussin, delsym and RX bensonate as well as azithromycin with absolutely no effect. My IPF is under control with deuperfinadone and has had only…

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]]> 8387ec0b168d968c0d67a8b376838ec9 CRE became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/40757/ Fri, 10 Nov 2023 15:44:22 -0600 0