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  • Denny

    Member
    August 17, 2023 at 2:20 pm in reply to: Initial Oximeter readings sometimes low

    Do either of you have pneumonitis where it takes longer to process oxygen? Do you have a good oximeter with a good battery? Mine does the same thing and it is because I have pneumonitis,

     

    Denny E

  • Denny

    Member
    January 10, 2023 at 8:16 pm in reply to: Healing scar tissue zoom call recording

    I am very interested in the link also for healing scar tissue. Thank you

    Dennis Eliassen.

  • Denny

    Member
    February 16, 2021 at 9:41 pm in reply to: Life span

    There are over 400 types of interstitial lung disease so that is why some will have a shorter life span than others. I believe that I have put mine into remission or stabilized it for over 4 years now. My IPF is nonspecific pneumonitis.

    Denny

  • Denny

    Member
    February 16, 2021 at 9:37 pm in reply to: WEI Institute Natural Care of Chronic Lung Diseases

    Just to let everyone know about WEI lab. It is a free phone call to get all the successful case studies from them and from the doctors that treat the patients. WEI has doctors and herbalists in all parts of the country that monitor the success from the herbs. They will send you several websites with different information from clients and doctors. No side effects from the herbs like Ofev and Esbriet. How much do you pay for Esbriet or Ofev. There are 3 people on this site that had success with the herbs that I talked to last year. It’s a free phone call to get the information. Also that statistics are 90% of people with IPF live 3-5 years (which is now 4-7 years) especially when detected early. 5% live less than 3 years and 5% live indefinitely.there are other people on this site that get laser treatment for the scarring and several that take serrapeptase for the scarring besides green tea extract. Call Frankie at WEI and she will send you everything you need.

    Denny

     

  • Denny

    Member
    February 12, 2021 at 11:16 am in reply to: WEI Institute Natural Care of Chronic Lung Diseases

    Yes Eileen, by both docs at Cleveland Clinic and U of Michigan. They don’t endorse them because they don’t study them but said to take them if I believe it is helping. No side effects, just better breathing.

    Denny

  • Denny

    Member
    February 11, 2021 at 5:07 pm in reply to: WEI Institute Natural Care of Chronic Lung Diseases

    Carlo, it was the herb because I was playing hockey while my breathing was getting rapidly worse. I ordered the herbs and in the third week I started noticing a difference. There are many cases where people would go off oxygen, in fact, I believe Steve Dragoo was able to quit oxygen and the doctor on this site. I did go to Germany and Austria around that time and visited every cathedral and lit a candle so maybe divine intervention played a role. My next lung test improved and my 4 tests since have been the same or better. As far as the GERD I tried it for two weeks, had a manometry test right after and it showed ZERO trace of GERD! I ordered a month worth of tea for immunity for COVID-19 and a two week supply of herbs that showed a 90% cure rate in Wuhan. I keep it handy in case I contract the disease. Maybe that is why China is so far ahead of the other countries. I their herbs definitely work for me.
    Call Frankie at 6128088785 and she can give you any info you want.

    Denny

  • Denny

    Member
    February 9, 2021 at 10:36 pm in reply to: WEI Institute Natural Care of Chronic Lung Diseases

    Hi Sam,

    I used the herbs from WEI Labs for 3 months when my fibrosis was progressing back in 2017, and for 1 month in 2018 and one month in 2019 to keep me stabilized. I had a lung function test last month and it was the same as my original test when I was diagnosed, in fact a couple tests should my numbers improved the last two times and I believe it was because I was back playing hockey. So I have been 100 % stable since my diagnosis. I have used their herbs for a couple other things like GERD and they really work but they are expensive. Ask for Frankie if you call there.

    Denny

  • Denny

    Member
    October 28, 2020 at 12:34 pm in reply to: GLPG1690 Clinical Trial

    Thought I would reply here. I was also disqualified at the U of M study of 1690 since my scarring was not bad enough. Watching for other clinical studies too…

     

     

  • Denny

    Member
    May 14, 2020 at 6:29 pm in reply to: EGCG Green Tea Extract

    I can’t believe the heading is worded wrong and they didn’t catch it! It says the tea extract stops ANTI fibrotic process. Shouldn’t it be PRO or leave the word ANTI out?

  • Denny

    Member
    February 25, 2020 at 1:26 pm in reply to: An Interview With a Pulmonologist

    Brian Southern is my Cleveland Clinic doctor. He diagnosed my usual interstitial pneumonitis by the scarring pattern on the CT and his panel was unanimous about NOT having a biopsy which would have ended my passion of playing hockey. I really like him.

  • Denny

    Member
    November 18, 2019 at 2:01 pm in reply to: Study Says Blocking IL-11 Reverses Lung Scarring In Mice

    That is very interesting! how can I find out more information?

  • Denny

    Member
    October 23, 2019 at 1:17 pm in reply to: Diet additions that might help AND WEI Institute cure claim – really?

    No, it was absolutely the WEI herbs. I was close to quitting hockey after 50 years because my breathing was decreasing rapidly. I took the herbs for 2 months and my breathing was greatly increased!! everyone on this forum that has taken Wei herbs has improved, in fact everyone from the west has improved.

     

    Denny

  • Denny

    Member
    October 21, 2019 at 1:48 am in reply to: Diet additions that might help AND WEI Institute cure claim – really?

    Leontis, I am not exchanging gases and my carbon dioxide is not being expelled as it should. My Oxygen level ranges from 95 to 97 on my finger.

  • Denny

    Member
    October 21, 2019 at 1:42 am in reply to: Diet additions that might help AND WEI Institute cure claim – really?

    No, those are my percentages on my dlco on my function test. 59% at diagnosis and 89% in June.

  • Denny

    Member
    October 19, 2019 at 9:09 am in reply to: Diet additions that might help AND WEI Institute cure claim – really?

    Leontis, my co2 level was 59% at diagnosis. It has improved to 69%, 72% twice and 89% in my last lung function test in June after the WEI lab herbs.

  • Denny

    Member
    September 20, 2019 at 8:35 am in reply to: Laser Therapy Results

    Good for you John! I am paying close attention to your numbers because I also have usual interstitial pneumonitis. I have raised my DLCO numbers from 59% at diagnosis to 89% in June. All of my other numbers are good. I haven’t started the laser therapy yet but I will when needed. the Wei herbs have improved my numbers a lot!

  • Denny

    Member
    June 10, 2019 at 9:46 am in reply to: Clinical studies of GLPG 1690 and BG00011

    I forgot to mention that the BG00011 testing is a weekly self administered shot and a monthly shot at the Clinic (2 hours one way drive), plus CT scans, PFTs, blood tests, etc. I would much rather do a phase 3 pills instead of phase 2b shots…

  • Denny

    Member
    August 17, 2023 at 2:29 pm in reply to: Sodium Pyruvate

    The inhaler has 3 ingredients mixed in and working together. Its not the sodium pyruvate by itself,

     

    Denny E

  • Denny

    Member
    August 2, 2023 at 2:18 pm in reply to: EGCG Green Tea Extract

    Jan, did you mean ATP or what is AST?

    Denny

  • Denny

    Member
    December 28, 2021 at 8:26 pm in reply to: Prospective change of meds: OFEV to Perfenidone

    Hi Joe, I have posted several times that I tried WEI Labs (Chinese herbs) and it seemed to have stopped my progression back in 2017. I was regressing and noticed while playing hockey, got diagnosed then did some research and found WEI Labs. They stopped my progression after 30 days and my next 8 PFTs have been stable or better than my original test. I did take them for 90 days and a 2 week profilactic dose once a year. Several others on this site have had different degrees of success. One went off oxygen. They are expensive.

    Denny

  • Denny

    Member
    April 2, 2021 at 5:49 pm in reply to: Unusual Medication Side Effects: Dry Hands & Skin

    I have several friends and my self that say it is from certain types of hand sanitizer and using a soap with no lotion or anything to help skin oils. That is what a dermatologist told me and said to use Amerlactin which keeps the skin moist. It has made a difference for me. She also said not to use antibacterial soaps which also dries the skin out.

     

    Denny

     

  • Denny

    Member
    December 6, 2020 at 9:39 am in reply to: Diet additions that might help AND WEI Institute cure claim – really?

    I take a two week profalactic dose once a year but I believe the 90 day treatment in 2017 may have STOPPED my progression since my numbers have changed and have improved slightly. My next lung function test is next month so I will see if the DLCO has changed. I also took a two week treatment for GERD two years ago that was also successful and I have a two week treatment on standby for the coronavirus which was tested over 90% successful in Wuhan, China in March because I believe these herbs work! I know they helped others on this site with IPF.

  • Denny

    Member
    August 27, 2019 at 4:30 pm in reply to: PFTs and a Reduction in DLCO Number.

    My DLCO was 59%when diagnosed in 2017. After taking WEI Lab Chinese herbs the numbers went from 69%, 76% twice and my last test was 89% in June. The herbs work!

  • Denny

    Member
    June 13, 2019 at 9:56 am in reply to: Clinical studies of GLPG 1690 and BG00011

    Steve,  I took the WEI herbs for 2 months in August of 2017 and it seemed to STOP any progression any helped my breathing a lot. They suggest to do an occassional 2 week or monthly dose once a year which I do. The herbs seemed to have stopped the progression if there was any because my last 4 function tests have been stable or improved and the one I had last week was my best to date, raising my low DLCO number 7%! I just took my annual dose recently. I know they work! I understand that Dr. Hall is having success with them also.

     

    Suzanne, keep me posted on your study. I am waiting to be called at U of M to start the study. I am actually nervous about doing it because I am feeling great right now and I am wondering if I could trigger something with the disease.

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