Biography

Name

Don Burns

Nickname

don-burns

Year of Birth

1938

Gender

Male

Location

Colorado

Relationship

Patient

Short Bio

I was diagnosed with IPF in 2018, but doctors believe, based on scans for pneumonia, that I’ve had it since 2014.  I have not used supplemental oxygen until this year, when a “perfect storm” of medical catastrophes felled me in January.  I am doing much better now, but struggle with need for oxygen and other daily challenges presented by having IPF.  I tried Ofev, but because of the medical problems I had, my pulmonologist stopped it.  I am very interested in clinical trials, but have been turned down for one, and am waiting for word on another coming up soon.  I constantly surf the internet and this forum for more information, and would like to participate.  Thank you for providing this platform.

Type of Diagnosis

IPF

Treatment / Medical Facility

National Jewish Hospital, Denver, CO

Current medication regimen

Began Ofev a year ago, but had to discontinue in January due to catastrophic medical issues: emergency colon surgery, followed by two heart attacks, then pneumonia.

Supplemental Oxygen

yes

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

Finally diagnosed one year ago; doctors think probably 5 years or more.

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