Doug Batten

I have been on Esbriet for about a year. I don’t have a metallic taste or loss of appetite. Some foods seem to have lost their flavor. I’m still good with chips and ice cream as @Cynthia mentioned. Also spicy foods seem to have more flavor.

Hi William and everyone, I live in Enterprise, OR. I was diagnosed with IPF 20 Dec 2017. My VA provider first saw something in an xray. She said it looked like scaring in the lungs. She sent me to a pulmonologist, through the Choice Program. The closest one was in Walla Walla, WA, about 110 miles away. The first of July 2018, I was put on on O2…[Read more]

Hi Keith,

I am currently on Pirfenidone. I Have haven’t had any side effects, although I am leery of too much sun. I go to see the Pulmonologist in July and do all the testing again. All he told me was to not believe everything I read on the internet.

Hi Keith ( @keithn )

Over 50 in Oregon. In fact I have hard time remembering back that far. LOL. I was diagnosed 20 Dec 2018. I am currently being treated in Walla Walla, WA.