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Doug Batten replied to the topic Loss of taste in the forum Esbriet (Pirfenidone) 4 months, 4 weeks ago
I have been on Esbriet for about a year. I don’t have a metallic taste or loss of appetite. Some foods seem to have lost their flavor. I’m still good with chips and ice cream as @Cynthia mentioned. Also spicy foods seem to have more flavor.
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Doug Batten replied to the topic Where do you live, receive care, and are you in a local support group? in the forum Polls & Quizzes 5 months ago
Hi William and everyone, I live in Enterprise, OR. I was diagnosed with IPF 20 Dec 2017. My VA provider first saw something in an xray. She said it looked like scaring in the lungs. She sent me to a pulmonologist, through the Choice Program. The closest one was in Walla Walla, WA, about 110 miles away. The first of July 2018, I was put on on O2…[Read more]
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Doug Batten replied to the topic Over 50, in Oregon? in the forum Living with Pulmonary Fibrosis: 50+ 6 months, 2 weeks ago
Hi Keith,
I am currently on Pirfenidone. I Have haven’t had any side effects, although I am leery of too much sun. I go to see the Pulmonologist in July and do all the testing again. All he told me was to not believe everything I read on the internet.
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Doug Batten replied to the topic Over 50, in Oregon? in the forum Living with Pulmonary Fibrosis: 50+ 6 months, 2 weeks ago
Hi Keith ( @keithn )
Over 50 in Oregon. In fact I have hard time remembering back that far. LOL. I was diagnosed 20 Dec 2018. I am currently being treated in Walla Walla, WA.
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Doug Batten's profile was updated 1 year, 4 months ago
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Doug Batten became a registered member 1 year, 4 months ago