doug-batten
Forum Replies Created
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I too have a loss of appetite, but it doesn’t seem to be as bad most. I eat because it is a habit. I just want to throw this out there for all you chocolate lovers. Chocolate is made from cocoa. Cocoa comes from trees. Therefore chocolate is a fruit!
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I have been on Esbriet for about a year. I don’t have a metallic taste or loss of appetite. Some foods seem to have lost their flavor. I’m still good with chips and ice cream as @Cynthia mentioned. Also spicy foods seem to have more flavor.
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Hi William and everyone, I live in Enterprise, OR. I was diagnosed with IPF 20 Dec 2017. My VA provider first saw something in an xray. She said it looked like scaring in the lungs. She sent me to a pulmonologist, through the Choice Program. The closest one was in Walla Walla, WA, about 110 miles away. The first of July 2018, I was put on on O2 for exercise and sleep at 2lpm. I started on Pirfenidone, the first of Aug 2018. The VA approved it with no questions. No side side effects. Even the sun hasn’t bothered me. The closest support group is in Portland, over 300 miles away. No pulmonary rehab close. Hope everyone is having the best day possible!
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Hi Keith,
I am currently on Pirfenidone. I Have haven’t had any side effects, although I am leery of too much sun. I go to see the Pulmonologist in July and do all the testing again. All he told me was to not believe everything I read on the internet.
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Hi Keith ( @keithn )
Over 50 in Oregon. In fact I have hard time remembering back that far. LOL. I was diagnosed 20 Dec 2018. I am currently being treated in Walla Walla, WA.