Everyone’s bodies are different. My husband was diagnosed in Fall of 2016. The fact that the meds could stave off decline made it important enough for him to start the meds. He was never sick in a 41 year career as a high school teacher. Those meds had the direct effect of keeping him steady for 5 years. All he had was a chronic cough. We got… Read more

I posted this in the end of life page, but it seems like that is what you are asking about.

Having just gone through this with my husband, Steve, diagnosed in 2016. We were going through the testing for a lung transplant and due to COVID he had not been seen in person from October 2020 to April 2021. He went from needing 1-3 liters… Read more

Once Steve was intubated, he was not frantic or in pain until we had to extubate him. They kept him comfortable and we could see his breathing and pulse increase when we talked to him, so I think he might have heard some of what we told him. Once his heart and kidneys began to fail, we needed to let him go. He was not aware of that. The… Read more

Having just gone through this with my husband, Steve, diagnosed in 2016. We were going through the testing for a lung transplant and due to COVID he had not been seen in person from October 2020 to April 2021. He went from needing 1-3 liters of supplemental oxygen to 4-6 liters. Then suddenly he needed 8-10 liters.

We were given all kinds… Read more