Pulmonary Fibrosis News Forums | Ed Caraher | Activity https://pulmonaryfibrosisnews.com/forums/members/ed-caraher/activity/ Activity feed for Ed Caraher. Mon, 20 Apr 2026 15:42:37 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 1027fec664b0663765d4342d6119cb3b Ed Caraher posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/5600/#acomment-13044 Fri, 14 Jun 2019 03:56:31 -0500 Thanks for getting back to me……. I still am not able to get to the forum since there is nothing above this message. Perhaps it is my lack of computer know how. Replying to your queries: I did drop back from 150 to 100mg and that helped for a bit….currently scheduled for a ctscan of the digestive area to see it there is something… Read more

In reply to - Ed Caraher became a registered member ]]> 298f5932568e576d422dac9632f3c18f Ed Caraher posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/5600/#acomment-12462 Sun, 26 May 2019 01:07:26 -0500 Hello again, Charlene, I have been coping with Ofev which seems to do more damage to my days than does IPF. Constant stomach problems and have not had a solid bowel movement since late January. Tried probotics, gluten free, sugar free, etc. with no change so finally stopped Ofev altogether.

Recent lung tests indicate that lung capacity, a… Read more

In reply to - Ed Caraher became a registered member ]]> 969b6c77c08ceca45d4af962fbe4e9df Ed Caraher posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/7975/#acomment-7992 Fri, 18 Jan 2019 17:15:05 -0600 Thanks very much for your quick and informative reply, Charlene. I will ask the doctor about reducing the dosage or quitting the drug altogether today if he is available. As well, keep watching this forum for any updates.

You are very gracious.
Ed

In reply to - Ed Caraher posted an update I will tell you….. Diagnosed last spring with IPF and started Ofev on Sept 7th. No side effects and the stuff seems to be working since I am not breathing as hard after my walks […] ]]> 03816b57f104a3f0be1e9baee8de6bf2 Ed Caraher posted an update: I will tell you..... Diagnosed last spring with IPF […] https://pulmonaryfibrosisnews.com/forums/activity/p/7975/ Fri, 18 Jan 2019 05:31:41 -0600 I will tell you….. Diagnosed last spring with IPF and started Ofev on Sept 7th. No side effects and the stuff seems to be working since I am not breathing as hard after my walks or climbing stairs…..also, I went to Calgary to visit my son last August and had a difficult time adjusting to the over 4000 foot higher altitude than is here… Read more

]]> 3 f228255adb6fadaf5e0b9e417eed4825 Ed Caraher posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/5600/#acomment-5624 Thu, 20 Sep 2018 03:29:36 -0500 Thank you, Charlene. This is a first for me and I am anxious to hear how others are coping with IPF.

In reply to - Ed Caraher became a registered member ]]> 9c95a141b998fa92c5413ea19649b932 Ed Caraher updated their profile https://pulmonaryfibrosisnews.com/forums/activity/p/5602/ Wed, 19 Sep 2018 03:25:53 -0500 0 47455d484276596a791257c6c580fc3b Ed Caraher became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/5600/ Wed, 19 Sep 2018 03:19:02 -0500 9