Pulmonary Fibrosis News Forums | Ed | Activity https://pulmonaryfibrosisnews.com/forums/members/edknn/activity/ Activity feed for Ed. Tue, 14 Apr 2026 20:19:10 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 a92dea0258c47496dffd23d37efe9924 Ed replied to the discussion Oxygen concentrators and travel in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/oxygen-concentrators-and-travel/#post-28721 Thu, 03 Jun 2021 20:44:28 -0500 Reply to Oxygen concentrators and travel

All OxyGo POC’s are FAA approved…https://oxygo.life/faqs  Remember you need 150% battery life for the trip. Make sure you contact your airline and they will tell how many batteries you need. Take into acct if the batteries have been used a lot as they can deliver less life than you think. You will most likely have to use at least the setting… Read more

]]> 9bfe6192e5dabf1a787a02499e68bf0f Ed replied to the discussion Portable Oxygen Concentators in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/portable-oxygen-concentators/#post-26410 Tue, 08 Dec 2020 22:25:29 -0600 Reply to Portable Oxygen Concentators

My wife has a POC through Medicare from Lincare. They will not supply extra batteries for flights or travel. We had to purchase one ourselves for $400.00

]]> e5fa0bd5d9acb76993d9c62674a8a21c Ed replied to the discussion PFTs and a Reduction in DLCO Number. in the forum Upcoming Medical Appointments: Q&As https://pulmonaryfibrosisnews.com/forums/forums/topic/pfts-and-a-reduction-in-dlco-number/#post-21177 Fri, 06 Sep 2019 14:14:09 -0500 Reply to PFTs and a Reduction in DLCO Number.

Best wishes to you too Lorraine.

]]> d06e3209100986b3dc8518313512ea59 Ed replied to the discussion PFTs and a Reduction in DLCO Number. in the forum Upcoming Medical Appointments: Q&As https://pulmonaryfibrosisnews.com/forums/forums/topic/pfts-and-a-reduction-in-dlco-number/#post-21169 Thu, 05 Sep 2019 16:33:36 -0500 Reply to PFTs and a Reduction in DLCO Number.

My wife did nothing. The DLCO came back all by itself.

]]> cc84b64fde96c7a4f956b40e818c82c0 Ed replied to the discussion PFTs and a Reduction in DLCO Number. in the forum Upcoming Medical Appointments: Q&As https://pulmonaryfibrosisnews.com/forums/forums/topic/pfts-and-a-reduction-in-dlco-number/#post-21031 Tue, 27 Aug 2019 14:28:14 -0500 Reply to PFTs and a Reduction in DLCO Number.

My wife’s DLCO went down 10% between her tests in Aug 2018 and April 2019. Her tests yesterday, Aug 2019 went back up 10% to her 2018 numbers. Other numbers stayed the same, but she dropped to 88% on her 6 min walk, never below the low 90’s before. She is not on O2 but her Dr. is retesting in 3 months.

Maybe your DLCO will go back up as hers… Read more

]]> ae6c0b23b28f9b9e2e34a5eb15f076d3 Ed posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/11732/#acomment-11746 Fri, 26 Apr 2019 22:08:16 -0500 Thanks for the add. Love your comment on the Lions. They have been in a so called rebuilding stage as long as I can remember….50 some years at least. Think they need rebuilding in the ownership area…LOL

In reply to - Ed became a registered member ]]> 56cfb21ec822cbda32bb677a34a7a4a3 Ed replied to the discussion Episodic Dizziness & Pulmonary Fibrosis in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/episodic-dizziness-pulmonary-fibrosis/#post-18791 Fri, 26 Apr 2019 18:40:16 -0500 Reply to Episodic Dizziness & Pulmonary Fibrosis

Not sure if this will help as I am a caregiver, not afflicted with this dreaded disease, but I have been having the same problem with dizziness. I started about a week ago where every time I rolled over in bed the room would start spinning and become very light headed. Also getting out of bed too fast would have the same result. Two days ago… Read more

]]> 88ed2917e738dc677b5262980c1d80c9 Ed became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/11732/ Fri, 26 Apr 2019 17:52:32 -0500 3