Biography

Name

Gail

Nickname

elizabethgaillyon

Year of Birth

1938

Gender

Female

Location

Western Australia

Relationship

Patient

Short Bio

I have no idea if you include Australian patients  I do not know anyone else who have IPF  even my GP didn’t know anything about it I see my specialist 6 monthly  until I found you on my iPad  all I knew about it was that I has a life expectancy of 2 to 5 years.  I have not found anyone here in West  Australia but I’m sure there must be some one somewhere. I now live in a retirement village which is very nice  but know one here has ever heard of IPF

 

 

 

 

much as possible. I have another son  who I love very much but he lives in New Zealand  so he can’t help very much My  wonderful husband died last year and I

 

 

 

 

 

but he lives in New Zealand. So he can’t help much

Type of Diagnosis

IPF

Treatment / Medical Facility

Respatory west

Current medication regimen

Ofev

Lung transplantation status

ineligible

Supplemental Oxygen

no

Best advice for PF symptom management

Exercise and try to keep as health as possible

Are you currently taking an anti-fibrotic medication?

yes

How did you find us?

Other

How long have you or the person that you are caring for had PF?

2 years

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