Biography

Name

Ellen Macko

Nickname

ellen-macko

Year of Birth

1952

Gender

Female

Location

New Jersey

Relationship

Patient

Short Bio

Have been diagnosed about 2 years with productive cough for 6 years.  Taking OFEV and followed at UPenn.  I had lu g transplant evaluation last Fall .  It is a bit early.  I retired in November last year.  It was good timing since I am a PT working in skilled nursing, assisted living and independent living.  I am finishing up Pulmonary Wellness boot camp and would highly recommend it.

Type of Diagnosis

PF of known aetiology

Treatment / Medical Facility

UPenn

Current medication regimen

Ofev, rayos Gabapentin, spriva

Lung transplantation status

to be determined

Supplemental Oxygen

yes

Best advice for PF symptom management

Exercise with O2 as needed regularly and monitor sats.

Are you currently taking an anti-fibrotic medication?

yes

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

6 years

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